| | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I hope you understand that the Drs and Hospitals will take what you can afford to pay them even if it's only a $5 bill when you have it. That is called a reasonable effort and the law backs this. I owe many thousands to them and I know I will never live long enough to pay them off, but they are nice about our arrangement. When I go for other and more treatments, we agreed that they will just add the new debt to the other ones and keep letting me pay what I can afford. Good luck with this and your life.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Oct 2010 Posts: 8 Member | | OP Member
Joined: Oct 2010 Posts: 8 | I went to the oral surgeon this morning,He said he didn't see anything that really concerned him but he is going to contact my dentist and get a copy of the biopsy report and call me back.
He didn't think that I have oral melanoma he said it looked like brown spots that people get when they get older?
He's a oral surgeon so he should Know I want to beleave everythings ok but since I moved up here I've seen some bad doctors,and some good ones the good ones are hard to find here! | | | | | Joined: Apr 2010 Posts: 201 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Apr 2010 Posts: 201 | Hey Lisa, I would ask or actually demand another biopsy at this point. Just explain to the dr that you don't feel comfortable without having solid evidence that it isn't cancer instead of a guess.
CG to Sister (42). Smoker quit @ diagnosis Dx 4/20/10 SCC T2N0M0, Rside of tongue Hemigloss R neck dis, all nodes removed 6/2/10, Trach and NG in, home 6/8/10,8/18/2010 start erbitux x6, 30 IMRT end 10/11/10 with only 3x erbitux due to reaction and one week off of rads
1/10/2011 Clear PET!!!
| | | | | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2010 Posts: 531 | WHAT THE HECK YOU HAVE IT YOU DON'T YOU DO YOU DON'T WHAT IS GOING ON WITH THE DOCS IN YOUR AREA? WOW I SURE HOPE YOU GET THE RIGHT DOCTOR AND CARE CUZ THIS IS NOT EVEN GOOD IF NOT TREATED ASAP!
Sorry for caps. I'm at work and type in caps all day for our computer program. But my boyfriend had just a little sore, he thought it was from his partial irritating his tongue until it grew and grew and by the time I saw it, and screamed, it was too late. He had to have a partial glossectomy, and I need to find out all the "medical terms" you all use. to me in layman terms, he had more than half of his tongue removed, he was cut from ear to ear, he had his bottom teeth all pulled in surgery, he had his lympnodes removed, he had a free flap constructed from his thigh and was with a trach and tube feeding for a couple months after the swallow study he was able to take the tube out and he had 30 days of radiation treatment but before that he had the rest of his top teeth all removed. he is now a skinny looking old man who has lost over 50lbs and seems not to care as he has gone back to his bad habits of drinking and smoking...before all this in Dec 07 he was diagnosed with Non Hodgkins Lymphoma which is a whole different story he has been free of Lymphoma since July 08. When will he get it? How he has been saved twice but continues his bad habits?
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
| | | | | Joined: Oct 2010 Posts: 8 Member | | OP Member
Joined: Oct 2010 Posts: 8 | I went to the oral surgeon he got a copy of the report and said I do not have oral carsonoma but I was given a copy in january that said oral carsonoma in situ w/nerve bundles I'm more confused than ever I want to beleave the oral surgeon but I saw the report and gave it to my doctor and she says if I don't have surgery I will die.
Should I get the copy of the report from my doctor and take it back to the oral surgeon or just be very thankfull that I don't have it ? is it possible that my dentist,doctor and me read it wrong? | | | | | Joined: Apr 2009 Posts: 329 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Apr 2009 Posts: 329 | I'm being kind this sounds really screwed up to me.
Hello Lisa....if I were you I'd get out of the town your in head to the nearest Cancer Center and take along the copy of your biopsy.
SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2.
Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.
CT Scan 9/11 clean, CT Scan 9/12 clean
Moffitt Cancer Center in Tampa, FL. A+.
My hometown Lockport, NY.
| | | | | Joined: Sep 2010 Posts: 3 Member | | Member
Joined: Sep 2010 Posts: 3 | Lisa: There is a Comprehensive Cancer Center in Tucson. Here is the contact information:
University of Arizona
David S. Alberts, M.D.
Director
1515 North Campbell Avenue
P.O. Box 245024
Tucson, Arizona 85724
Tel: (520) 626-7685
Fax: (520) 626-6898
Contact them immediately, your life depends upon it. - Candace
Candace
brother, stage IV tongue cancer, died 2006
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