| | Joined: Oct 2010 Posts: 8 Member | OP  Member
Joined: Oct 2010 Posts: 8 | I went to the dentist december last year he found what he said was probably oral cancer and oral melenoma he biopsied the oral caner and it was oral carsenoma in siti, he sent the results to my doctor and she she sent me to a ear nose and throat dr for emergency surgery and he said lets just watch it and see I just went back to my dr and she said if i don't have surgery i will die she was very upset and is sending me to a oarl surgeon I dont have insurance if I dont have surgery how fast will this kill me ? | | | | | Joined: Apr 2009 Posts: 329 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Apr 2009 Posts: 329 | If it was me I would go to the Oral Surgeon then take it from there. A Cancer Center might help you work out a payment plan or you might be eligible for some kind of health coverage like Medicaid.
As far as your husband saying it's not cancer is he a Doctor?
SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2.
Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.
CT Scan 9/11 clean, CT Scan 9/12 clean
Moffitt Cancer Center in Tampa, FL. A+.
My hometown Lockport, NY.
| | | | | Joined: Mar 2002 Posts: 4,918 Likes: 66 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 66 | You went to an ENT with a firm pathology report of a carcinoma in situ and he did NOTHING???? This guy should be reported to the medical board. If this has had a chance to proser into something more dangerous and more difficult to treat, then you have course for legal remedy. That will pay for your treatments..... Find a good lawyer and have him call me.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Oct 2010 Posts: 8 Member | | OP Member
Joined: Oct 2010 Posts: 8 | Thank you its comforting to be able to talk to some one about this, I feel like I am all alone right now my husband and my boys are wonderfull people I think they just don't know how to deal with this so they want to pretend its not real.
thx so much | | | | | Joined: Apr 2010 Posts: 201 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Apr 2010 Posts: 201 | Hi Lisa and Welcome. As a caregiver in the beginning I to didn't realize or seem to believe my sister had cancer. She looked fine how could that be? Reality hit big after surgery. Everyone deals with it differently. Hope you follow up with a dr though.
CG to Sister (42). Smoker quit @ diagnosis Dx 4/20/10 SCC T2N0M0, Rside of tongue Hemigloss R neck dis, all nodes removed 6/2/10, Trach and NG in, home 6/8/10,8/18/2010 start erbitux x6, 30 IMRT end 10/11/10 with only 3x erbitux due to reaction and one week off of rads
1/10/2011 Clear PET!!!
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | It's must be easy to look fine. LOL I still look great until they look at my turkey neck and sunken in gums. LOL look like Popeye remade. Never did lose my hair and was supposed to. Actually, this has just started bothering my mind lately but I tyhink that is bacause my jaw bones are deteriorating bad. I think the left lower is almost completely gone. It's a tough world but I'll keep it and fight to stay awhile longer.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Oct 2010 Posts: 8 Member | | OP Member
Joined: Oct 2010 Posts: 8 | hi,
does anyone know what will happen if i dont get treatment or surgery ? I dont have insurance and i live in a small town not very many good doctors. | | | | | Joined: May 2010 Posts: 638 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: May 2010 Posts: 638 | Hi Lisa
I am sorry to have to be so blunt but your doctor has already told you that you will die without treatment. How fast is impossible to say as oral cancer affects so many parts of the mouth and grows at different rates in different people. You are in a tough situatio with no insurance and no cancer centre in your area but I am sure your regular doctor will be help you manage this. Have you been to the oral surgeon yet? What did he or she say?
Karen Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes Dx March 2010 51yrs. Unresectable. HPV+ve Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31 Chemoradiation (IMRTx35 + weekly cisplatin) Finish Aug 27 Return to work 2 years on 3 years out Aug 27 2013 NED  Still underweight
| | | | | Joined: Oct 2010 Posts: 8 Member | | OP Member
Joined: Oct 2010 Posts: 8 | KLO,
I HAVE NOT SEEN THE ORAL SURGEON YET MY DR IS SETTING THAT UP FOR ME ASAP THANK YOU BLUNT IS FINE AND I APPRECIATE IT.
| | | | | Joined: Apr 2009 Posts: 329 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Apr 2009 Posts: 329 | Lisa,
Where is the Oral Cancer in your mouth, tongue, cheek, throat, where is it located?
Cancer Centers will work with you they have social workers who will help you. You might be qualified for Medicaid.
I hope you get your appointment ASAP this is a very aggressive cancer.
Connie
Last edited by ConnieFL; 10-18-2010 10:29 AM.
SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2.
Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.
CT Scan 9/11 clean, CT Scan 9/12 clean
Moffitt Cancer Center in Tampa, FL. A+.
My hometown Lockport, NY.
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