#12345 10-01-2007 10:40 AM | Joined: Sep 2007 Posts: 61 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Sep 2007 Posts: 61 | Hi Everyone,
My friend has finished her first round of chemo and just started with nausea, but her biggest complaint is the taste of "tin mouth". I know this is a common side effect-does anyone have any remedies that helped? Nurses said to try Jolly Rancher candies and to "keep on rinsing" with baking soda.
Thanks,
Liz
CG to friend Mary. SCC Stage IV-A of rt. tonsil, mets. to lymph node on rt. DX 06/07,tonsillectomy 08/07, Chemo Cisplatin, Taxotere and 5FU X3 cycles; RAD completed 1/20/08 RND scheduled for 3/08. 54yr.old, NS, social drinker.
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#12346 10-01-2007 12:07 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | No matter how bad the taste is, I would stay away from the Jolly Ranchers. Of course, I'm a dentist and you expect me to say that. However, I would stick with the baking soda.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#12347 10-01-2007 04:02 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Or sugarless candies at least. Teeth after radiation decay easily!
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#12348 10-02-2007 02:03 AM | Joined: May 2007 Posts: 622 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 622 Likes: 1 | One things that I was told was to avoid metal eating utensils (forks, spoons etc) and use plastic and also to cook in the microwave using ceramic bowls and such. I never had the symptoms so I still have an industrial size box of plastic forks, and paper plates  Kevin
18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking | | |
#12349 10-03-2007 02:42 AM | Joined: Jul 2005 Posts: 624 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2005 Posts: 624 | Also, she may find that some foods or even water tastes terribly metallic while others are OK -- my husband found our normal tap water became very metallic-tasting maybe 3 weeks into treatment (about the time he had his first brush with thrush). I tried a lot of bottled waters and some of these were also no good, perhaps because many have high mineral content. Eventually he found that Poland Spring and also, the bottled water from Trader Joe's was OK. But I am sure that is an individual thing.
Salt/soda and also, l-glutamine rinses may help with the after-taste. Sometimes a fruity flavor (bit of applesauce, for example) helps take the bad taste away.
And as was posted above, avoid metallic utensils and dishes.
Gail
CG to husband Barry, dx. 7/21/05, age 66, SCC rgt. tonsil, BOT, 2 nodes (stg. IV), HPV+, tonsillectomy, 7x carboplatin, 35x tomoTherapy IMRT w/ Ethyol @ Johns Hopkins, thru treatment 9/28/05, HPV vaccine trial 12/06-present. Looking good!
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