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#123399 10-21-2010 01:13 PM
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Hello!
I have recently learned of The OCF and this forum and feel like I have discovered a family that I didn't know I had. I am 17 and a half years out from my treatment for two bouts of oral cancer.
I am alive and well and telling my story of survival to groups around the country. Certainly, there are still issues to deal with from the cancer. But I survived to become a grandmother and am very grateful for the bonus life I have.
Looking forward to chatting with you all. I am happy to offer any support I can from this vantage point!
Take great care,
Terri

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Welcome to OCF Terri,
It always does our hearts good to hear from long term survivors.
17 years is wonderful (congratulations) and gives comfort and hope to those who are going through treatment now. Also encouraging for those of us worried about a recurrence. I am sure many here would love to hear your story and a good start would be to put a brief description in your signature.
Go to My Stuff, Profile and when you scroll down to the bottom you will see signature. What you add there it will come up with every post.
I am looking forward to hearing more from you.
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

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Wow!! Welcome Teri! Seeing a 17 year survivor is so uplifting. Where was your cancer located?


CG to Sister (42). Smoker quit @ diagnosis Dx 4/20/10 SCC T2N0M0, Rside of tongue Hemigloss R neck dis, all nodes removed 6/2/10, Trach and NG in, home 6/8/10,8/18/2010 start erbitux x6, 30 IMRT end 10/11/10 with only 3x erbitux due to reaction and one week off of rads
1/10/2011 Clear PET!!!
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Welcome Teri! It's so uplifting hearing that your a long term survivor. Can't wait to get to know you better!


Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
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Me too, Teri. I will be looking for more information from you as to the type oc you had and your treatment(s). WOW - 17 years! That's wonderful and so encouraging, which is what we all need. Thank you for joining us.

julieann


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
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Wecome aboard Terri. Your type of OC history is a great for us to read. I hope you post your history as to where you had OC and what the Drs did to cure you so long ago.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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Welcome Teri


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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Welcome Terri,
Good to hear from another long term survivor. As Gabe suggested, please update your signature so all will know where your cancer was and what type of treatment you received.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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Hi Terri and welcome, wow, 17 years, that is wonderful! And it is also very hopeful, I have had 3 bouts of it myself. Again, thanks so much for joining us! Take Care, Carol


Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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Welcome to OCF Terri. So nice to have another long term survivor on board smile Im sure you will be able to help many with your experiences. We all would love to hear your story. Hope you take the time to add your signature.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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