| | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) |  Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Una, welcome to OCF. There are several here who have similiar problems. For the best results always start your own new post. That way your post will receive the attention it deserves.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Oct 2010 Posts: 10 Member | | Member
Joined: Oct 2010 Posts: 10 | Thanks. Its good to chat and the problem is so rare. | | | | | Joined: Oct 2010 Posts: 10 Member | | Member
Joined: Oct 2010 Posts: 10 | Hi I had squama cell cancer on my tonsil and received chemotherapy and radiotherapy. I am a year and 3 months on peg tube. I have upper oesophical stenosis and am only able to swallow a trickle of water. My oesophagus was unable to be dilated because it has gone so narrow after treatment and I was unable to swallow barium for barium swwallow. Is there anybody with a similar problem?
| | | | | Joined: Jan 2004 Posts: 316 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jan 2004 Posts: 316 | Hi all,
Had my dilation yesterday under a general and the doc found the stricture. 24 hrs later I'm still sore in my upper throat, but panadiene soluble sort of helps. Probably will have another one - he said my throat was so tiny! No wonder I can't eat properly! Now people will believe me why I have had these problems (I'm one of those people who doesn't go to docs & dentists until there a serious problem ;-)) But at least I'm on the track again :-)!
Cheers!
Tizz
End of Radiation - the "Ides of March" 2004 :-)
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Glad they found it M...are you on a puree diet or can you eat something a little more substantial?? Of course this in is on a need to know basis  Love Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Jan 2004 Posts: 316 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jan 2004 Posts: 316 | Back again,
Saw my surgeon yesterday and am booked in for another dilation, this time a water one up top. He showed me the op and where the problem is, scar tissue or fibrous tissue from radio of course. The first dilation has helped somewhat, but was painful.
Una, I never had a peg, just lots of banana smoothies, Sustagen and 'mulch' ;-), so can't help you there, hopefully someone can.
Tizz
End of Radiation - the "Ides of March" 2004 :-)
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Makes shopping easy and of course cheap.
Shall I get some mangoes or something more exotic for a smoothy.
How about smoked salmon or caviar?
Mulch..now thats a challenge!
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
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