| Joined: Jul 2004 Posts: 188 Likes: 1 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Jul 2004 Posts: 188 Likes: 1 | Congratulations Brian. The OCF has provided a beacon of hope and help for those of us diagnosed with this disease and our caregivers. I can't thank you enough for the help and for the opportunity to help others that the foundation has provided me. I would like to join in with those encouraging a donation to the foundation. It's the time of year when large corporations hold their "Giving Campaigns" and payroll deduction is an easy way to make a donation, while potentially getting some matching money from your employer. Check it out. Or send a check. We are all aware of the work that Brian and the Foundation do. There is no other charity more deserving of our support. Good Health, Chuck
SCC Stage IV right tonsil T3N3M0. Dx 08/03. Clinical Trial:8 weeks Taxol, Carboplatin then Hydrea, 5FU, IMRT x's 48, SND, Iressa x 2yrs. Now 20 years out and thriving. Dealing with a Prostate cancer diagnosis now. Add a Bladder cancer diagnosis to all the fun. It's always something "Adversity doesn't build character, it reveals it." | | | | Joined: Sep 2010 Posts: 26 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Sep 2010 Posts: 26 |
CG to 44 year old husband, Dx: 9/23/10 SCC T2N0M0 (Right Tonsil)
Radiation only started on 10/13/2010 13/33 Radiation Treatments done!
| | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Congratulations Brian. No one deserves it more than you. As one who went through treatment right before you with no support group whatsoever, I know how much this forum has to mean to people. Thanks you for your time and dedication to this cause.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | Joined: Mar 2002 Posts: 4,918 Likes: 65 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 65 | I would like to thank all of you for your well wishes. This was all kind of a surprise to me. Most of the time I do not think of organizations like this, as the day to day interactions with patients, researchers, students and more keep me pretty focused on the tasks at hand, and while I interact with RO's all the time, I wouldn't have guessed that as a group they would have even noticed OCF, let alone me individually.
Of course the great benefit of this is that it becomes another vehicle to get the oral cancer story out in the media, which it appears that ASTRO has done, and on the morning of the award next week, they have arranged several radio interviews (one live, two recording for future release) about patient issues (which I will turn into oral cancer issues).
For all the kind comments posted here, I want you all to remember, especially since most of you mentioned the forum, three things. ALL OF YOU make this forum the rich, helpful, nurturing environment that it is, not me. Without you it is just a piece of software. What OCF has accomplished is primarily because of my desire to build strategic relationships with others that can help us move our disease into the light, find answers for questions, and much more. Were it not for the strengths of those partners like Gillison in research as just one example, no one would notice, since there would be no shoulders for me to stand on. I and the foundation are only as strong as those who partner with and support us. And last, that I am common beyond words, too common for this kind of recognition. The redeeming trait I do posses, is tenacity, which for the most part means that it never occurs to me that something can not be done given enough effort, and less than I choose to tilt at windmills.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | The ASTRO award or any other recognition that you receive, Brian, is so richly deserved for all that you have done for us and for bringing to light the oral cancer issues. We are all so fortunate to have found you and this forum. OCF has been a lifesaver in my darkest moments and the hope and the light at the end of the dark tunnel. Congratulations and thank you for being one awesome guy!
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,409 | Brian, you've become one of my personal heroes. And I don't have many.
David 2
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | "OCF Canuck" Patient Advocate (1000+ posts) Joined: Sep 2006 Posts: 1,357 Likes: 5 | How fabulous. I echo the others in saying that you are MY Hero. You know why you were put here and we all are grateful that you were.
Congratulations
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | Joined: Oct 2007 Posts: 83 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Oct 2007 Posts: 83 | Congrats Brian...not much to add that hasn't already been said.
But..Thank you, for providing a place for us to meet and for everything else you do.
Stage 4b BOT and node on right of throat. did 38 trips of TOMO PEG tube,Cysplatin,Taxotere & 5fu 1st 4th and 7th week, changed to Erbitux for the last 4 weeks. 1st PETS since end of TX..CLEAR 6mos out and 2 nodes are hot. Bilateral neck dissection on 10/31/08. Clear Scan 3/31/09 & 8/02/2010
| | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Nov 2007 Posts: 681 | Congratulations Brian, May this award help in the campaign to irradicate OC and all cancers. Thank you for what you have done and are doing. May you continue to greater success in your efforts. Malka
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013. Support OCF
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