| | Joined: Sep 2009 Posts: 177 Senior Member (100+ posts) |  Senior Member (100+ posts)
Joined: Sep 2009 Posts: 177 | Jim,
I am sorry that your feeling so down. I have been here for a just a little over 1 year and your one of the constants around here. I always look forward to reading your posts and hearing your bits of strength and wisdom. Is it possible for you to get a feeding tube? I know my worst days have been when I was so hungry and weak from not enough nutrition. I am sorry about your kids also, I hope I never let my folks down. They are and have alsways been my strength, My focus right now is to help them in these late years and be there for them. Unfortunately, when I was younger, I didn't always see just how much they needed me. I too was really busy working and trying to raise a family. Hopefully your kids will open their eyes and see how important it is to be here for you right now. Take care. Hopefully when this upcomming surgery is over you will feel better. I get so scared and gloomy when I have surgery's and such happening.
Wendy
46yrs@ DX 9/16/09 T1N0 SCC of leftlat tongue, poorly differentiated.Partial glosectomy 10/01/09 & 10/16/09 & 11/10/09 60-70% tongue removed, Radical fff, 38 nodes-clear, no rads/chemo. 3 petscans-clear
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Thanks for reminding me about the Eskimos. I saw a documentary about that a few years ago. I have my self cheered up today. LOL Woked my butt off for awhile and am ready to go buy some flat 18 X 18 blocks to lay in front of my shed. Thank you for the boost all. I knew you guys could wake me up. (^*^)
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Adopt me Jim..I would look after you  Then again I had better stay put to look after my Dad 81 with pancreatitis and Mum 82 with her pacemaker and on warfarin. At the moment thankfully both are doing OK. They have each other and live only 30min away. We have lunch out every 2nd Sunday and I organise our holidays for 3. I have already booked for Christmas to spend it close to the rest of the family. We had to cancel last year as Dad landed in hospital for 4 weeks. I am so sad that your children are not there for you now when you need the most. Tell them all if they are not nicer to you now they are out of the will. (BTW that does not motivate me because mine are just getting by on welfare (love them both dearly). I wouldn�t advocate the yak�s home in Timbuktu however there is always OCF to threaten them with. You need to be with us for a long, long time with your health improving so that you can make their lives miserable�just kidding! My love and best wishes for the upcoming surgery. Angel Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Feb 2010 Posts: 235 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Feb 2010 Posts: 235 | Jim, I'm glad to see your mood is starting to improve. I agree with Christine that the upcoming surgery has to be a bit draining. It's understandable that you would get moments of being down but I have no doubt you will deal with this with your usual strength and dignity.
I'm sorry too that your kids are disappointing you. I think sometimes no matter how old some kids get, they sometimes forget that parents are people too and that thoughtful , loving gestures should go both ways!!!
As soon as I joined this board I figured out that you were someone that an awful lot of people have a great fondness for. It's easy to see why. I just hope when you are feeling down all the caring from here helps.
CG to Spouse BOT, Chemo and radiation started on March 29,2010
Ended on May 14,2010. LET THE HEALING BEGIN!!!
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Jim - Glad you got yourself cheered up. I knew you could do it! Been thinking a lot about everything said here re our children. I think that sometimes when we feel neglected or maybe just ignored, it may not be the intention of those we love to send such a message to us. The message we receive is not always the message sent. We all have our own concerns, obligations, joys and stresses and depending on how these are affecting us at the moment, our "messages" will be impacted as well. Just know that you do have a family here that cares about you and wishing you success in your upcoming surgery. Hang in there, baby!
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Sep 2010 Posts: 179 "OCF Down Under" Senior Member (100+ posts) | | "OCF Down Under" Senior Member (100+ posts)
Joined: Sep 2010 Posts: 179 | Jim,
it makes me sad reading your post because i'm still young (35yrs) and before i was hospitalised with oral cancer i didnt realise how lonely the some older people were. Guess i was like your kids - busy raising my own family and used to being looked after by my parents rather than the other way around. While i was in hospital, i saw how lonely the older patients were and how their kids did not visit them. It broke my heart but if i did not see it then i prob would not even think about it. I said to myself there and then that when i'm out of hospital i would spend more time with my parents and help then out more. Your kids, like me probably does not realise how hurt and sad you are - maybe you can express your disappointment to them? Its not that they dont care or love you, they just got caught up with their own life and just need to be reminded that you need them too.
I'm not very good with my words so i hope i have not offended you with my post. I'm only newish on here and take great comfort from your posts and many others. I feel selfish sometimes that i'm only taking comfort rather than providing comfort. My thoughts are with you during low times - something which we all go through.
Minh
35 Yrs old
03/10 SCC T1-T2
Partial Glossectemy end March - margins not clear enough.
While waiting for resection - cancer returned,2 new cancerous lumps
Re-section End May & flap from cheek attatched. Margins clear.
Mid June - 4 teeth out
Mid July -32 Rads and 3 Cisplatin
6th Sept 10 Finished Treatment!!
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Naw Minh, you words are fine with a lot of truth in them. My kids find time to run all over the Valley including Pittsburgh a couple of times a week. LOL I guess about 5 miles is too far. I think I get more fed up with the things I am finding harder to do. Thinkin I needed my family in OCF to cheer me up as they have done for the past 3 1/2 yrs. Thanks all. You all are the best from the get around June 2007.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | No, Jim. YOU ARE THE BEST. Sleep tight, nite, nite.
(((((((((Jim))))))))))))
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer  | | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Just how do you know I am the best (((((((((((Julie))))))))))))))) LOL even if it's the truth. J/K Drinking my V8 Juice.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | We ALL know you are "the best." Just ask anyone on the Forum  julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer | | |
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