| | Joined: Apr 2009 Posts: 75 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Apr 2009 Posts: 75 | Hi Everyone!!
My dad's doctor is planning on stretching his throat. Does anyone know how this is done? Will he be sedated? The Dr. thinks that if my dad's throat is stretched he will be able to get trach out. Please pray for him.
Boston
Squamous cell / BOT with lymph node involvment, Stage 4, HIV-, cisplatin 3 weeks of 7, stopped due to kidney issues and neuropathy,35 radiation treatment started 5/6/09,started weekly erbitux on 6/2/09. Completed tx on 6/24/09, biopsy 8/11/09 clean, PET Scan 10/5/09 clear, PET Scan 6/11/10 clear
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Hi Boston - Until someone with more direct experience gets to you, if you go to top right side of this page and type in "stricture" you will see a lot of posts on stretching the throat and some specific information with different experiences. I hope everything turns out ok for your Dad. Let us know what happens.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | Hi Anne Marie:
It just so happens that I'm having it done tomorrow. It's called an endoscopy and I've had it done about 3 or 4 times since my treatments ended in January 08. You are sedated, but not strong because one of the times I had it done, I actually could hear them talking. Every time I have had it done, I can swallow better, but for not very long. Unfortunately, it's not permanent, or at least it isn't for me. Tomorrow they're also going to check some osteophytes (bone spurs) that are growing inside my throat to make sure that's not impeding on my swallowing. I had a swallow test, and the person who read it said it wasn't, but the doctor doing the endoscopy is going to check anyway. I hope your Dad does okay, and I will be thinking of him. Also, please say a little prayer for me too because I'm such a "chicken."
Julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer  | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Julieann,
Did you have the PEG?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | Hi David:
Yes, I had the PEG, for almost a year, I think. Why?
julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Just curious. We have had discussions in the past about people who didn't have a PEG ending up with constriction problems so that's why I asked.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Every 3 months for a lot of years. They put you in la la land and while they put the scope down your esophagus, they take small biopsies. After and most of the time you don't even notice it after uless the biopsy is one a little larger. Mine is from Esophageal surgery in 1996.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Julieann, I find it hard to believe you are a chicken but have you in my prayers . I forgot that the 1st time I had this procedure, the Dr kept me awake.. Damn, I thought he was trying to do me in. LOL I have never choked so much and he learned the put em to sleep method. I hope thiongs went well for you today.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | Hi All: Finished having my esophagus stretched about an hour ago where my esophagus and stomach areas were checked; he noticed an abundance of saliva/mucus being produced (where?) around the area of my esophagus, but my esophagus looked normal; he's referring me to a Swallowing Center. He found a small area around my stomach that's red; a peptic ulcer he thinks. With the prayers from you all, I... survived. Anyone know of a Swallowing Center? Boston: The one thing that I had to wait on was my turn because there was a lot of patients having endoscopies colonoscopies. I remember talking to the anesthetist one minute and the next minute I was back in the recovery room. Your Dad shouldn't have any trouble. My troat doesn't even hurt at all, but they said eat soft foods for the rest of the day - golly, I sure have plenty of that. I'll pray your Dad does as well. P.S., after I got the first part of my anesthia, I really didn't care anyway LOL. Julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer | | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | Jim:
I cannot believe they made you stay awake for your procedure. I once was having a colonscopy, and halfway through it, my blood pressure started dropping, so they had to stop the anestheia. That tube thing was still in my intestines and they had to pull it out - eeeeeeeeeeeeeeeeeeeeeeeeeeeeeek! Maybe that's why I'm such a chicken for such a procedure, when I'm not in most other areas. Thanks for the prayer. Later,
julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer | | |
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