#12291 10-03-2007 06:10 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hi Jerry, trust me when I say that it took threats and calls from my sister in law lawyer and my brother who is a vp at dean whitter in Boston to call them repeatedly to get this accomplished. The new enrollment date for our insurance was Nov. 1st, which was to late. We got one lady who's mom had died of cancer and she teamed up with another broker who also lost his mother to cancer and they really helped us know what button to push. As of 3:00 today the change wasn't showing up in their computer system, so it still showed us as denied. My husband had had enogh by then and he called. Within the hour the president of our insurance company had called the president of John Hopkins to assure him that I would be covered. We;ll still owe huge amounts of money but nothing like we would have been looking at before this policy change. I'm heading to bed to get a few hours sleep before this surgery. Ball of fear is all I can call myself, but a ball of fear that is ready and prepared for this surgery.
Love to all,Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#12292 10-03-2007 06:18 PM | Joined: Mar 2007 Posts: 163 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2007 Posts: 163 | Megan did you get my e mail about my screw up on paypal....what I did folks was... I managed to mess up my donation and instead if giving $25.00 I typed in $25.000..... I feel soooo stupid! I will be sending lots of positive vibes her way tomorrow. Love Marica
Caregiver to husband (Pete) Stage IV Base of Tongue. Dx 04 2003 Chemo/Radiation no surgery.. doing great!
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#12293 10-04-2007 02:10 AM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Thinking of you and your family.
Love to all. God Bless.
Love,
Donna
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#12294 10-04-2007 02:14 AM | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | You are in my thoughts and prayers today. I just have a feeling that all will be well with you. You are a fighter and you will succeed!
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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#12295 10-04-2007 02:23 AM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Minnie....more prayers coming from Louisiana, joining the hundreds praying for you at this moment. We'll "storm the heavens" in your behalf!
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#12296 10-04-2007 05:59 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Minnie--if I, as a pretty 'hopeless case' have had good news today, then this has to be an omen for you!
Your op was all I could think about when doc told me more than 50% shrinkeage!
I'm not superstitious, just 'some' spiritual and religious and am just so sure this has to be a sign!
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#12297 10-04-2007 07:49 AM | Joined: Mar 2007 Posts: 179 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2007 Posts: 179 | Minnie, PLease be assured you are in our prayers today. Our church is celebrating Confirmation today and you are in our prayers. I know the Spirit will rest upon you and give you peace. Prayers to your wonderful family also.
LJ
CG to husband 53,39 rads. 3 rds cisplastin ended 6/2/07 Tonsils removed 1.10.07 11 of 20 nodes positive- lump removed on rt. side of neck 1/26/07 cancer of nasal pharnyx TXN2MX 2nd rd. of chemo- carbo/taxol on 6/11/07
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#12298 10-04-2007 11:17 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Minnie and family, you are all in my thoughts and prayers.....Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#12299 10-04-2007 12:24 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | Minnie and family
You have been in my thoughts and prayers all day ! I hope you are out of suregry and revcovery and resting comfortably in your room . I am sending prayers and positive thoughts your way !!
Shar
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#12300 10-04-2007 12:48 PM | Joined: Aug 2005 Posts: 158 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Aug 2005 Posts: 158 | Minnie and clan, add me and my network to those who have you in our thoughts and prayers as you head into surgery. The power will be with you throughout the entire process.
As Devo said, "Whip it. Whip it good"!!!!!!!!!!
Bill
No love, no friendship can cross the path of our destiny without leaving some mark on it forever. - Francois Mauriac
Thank you for leaving your mark.
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