| Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Jan 2006 Posts: 756 Likes: 1 | This Saturday, October 2nd, the 2nd Annual Lehigh Valley Oral Cancer Awareness walk will be held at Bethlehem Township Municipal Park, 2900 Farmersville Road, Bethlehem, PA. The park is located near the intersection of Routes 22 and 33, about 1 hour north of Philadelphia and just across the border from New Jersey. Registration begins at 9:30 a.m.; Walk starts at 11 a.m.
The planning committee consists of local oral cancer survivors:
Eva, 12 Year Survivor, Stage 4 (chair) Susan, 5 Year Survivor, Stage 1 (me, the co-chair) David, 16 Year Survivor, Stage 3 Jim, 12 Year Survivor, Stage 3 Joe, 4 Year Survivor, Stage 2 Cindy, 2 Year Survivor, Stage 4 John, 1 Year Survivor, Stage 4 Kathie � a healthy friend of mine
Music and entertainment will be provided by local DJ Fred who is a 1 year, stage 4 survivor.
There will be quite a few OCF members there, so if you are in the area, please come and support the event and OCF!!
If you need more info, pm me or email me!!
Thanks!!
Susan
SCC R-Lateral tongue, T1N0M0 Age 47 at Dx, non-smoker, casual drinker, HPV- Surgery: June 2005 RT: Feb-Apr 2006 HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105! Recurrence/Surgeries: Jan & Apr 2010 Biopsy 2/2011: Moderate dysplasia Surgery 4/2011: Mild dysplasia Dental issues: 2013-2022 (ORN)
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Susan does an excellent job with organizing the walk. She puts in many, many hours with meetings and planning this event. It takes months to pull together a successful walk. Thru OCF, I have met Susan and gotten to know her. Im proud to have Susan as my friend, Im looking forward to attending her walk. Hope others in the area will also come out to join us to support OCF and oral cancer awareness. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Nov 2009 Posts: 76 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Nov 2009 Posts: 76 | susan- good luck at your walk this weekend! some of my husband's family from the lehigh valley are planning to attend since they could not attend the NJ walk. look for the red shirts!
*KATIE* future FIL dx with s4 SCC in jaw11/09 15 hour surg/trach/PEG in. 7 weeks of cisplatin/rads. 6/10- cancerous lung nodule- 1 wk of radiation. 8/13 pneumonia. 8/24 pulmonary embolism, on ventillator. 9/3/10 died peacefully w/o pain with family. 9/17/10 my wedding
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Excellent job with the walk today Susan!!!! It was perfect weather. There was a great turnout nad wonderful speaches given. It was alot of fun.
Here is a link to the local newspapers photos. An article should be printed in tomorrows paper.
http://www.mcall.com/photos/mc-oral-cancer-100210-pictures,0,4552035.photogallery ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jun 2008 Posts: 475 | Thanks to all who participated in the 2nd Annual Bethlehem Oral CAncer Walk, it looked like it was a great day!!! Anyone else who participated, let us know about it!!!
Thanks!!
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Jan 2006 Posts: 756 Likes: 1 | I want to thank everyone who attended, our sponsors, our OC screeners, and our committee for making the walk a success. I also want to thank �Mother Nature� for the beautiful weather � I was really concerned that we were going to have to turn the walk into a �walk and swim� event after all the rain we had a few days prior to the walk!
The event was in a community park and had a lot of local residents who were there to attend a sporting event, use the fitness center, etc. We had a group of 20+ Temple Dental students who came to the event, and they set up a table between our pavilion and the community center�s fitness center. They passed out information and answered questions on oral cancer and proper dental hygiene for all age groups, including a lot of information for children. They also handed out a lot of free toothbrushes, toothpaste, dental floss, etc. They were a great group of students � the future dentists who are being trained to detect OC early! They plan on attending our walk next year and offer the same support.
The DJ who provided entertainment was an oral cancer survivor. Our planning committee consisted of 7 OC survivors and we all gave a brief talk about our OC experience. The local newspaper also had 3 pictures from the walk along with a brief write-up in addition to having the on-line photos.
If anyone wants to conduct an event in their area, Susan Lauria is a great resource and can certainly help make planning such an event, well not �easy� but certainly doable! Thank you Susan for all your help and advice!
Susan
SCC R-Lateral tongue, T1N0M0 Age 47 at Dx, non-smoker, casual drinker, HPV- Surgery: June 2005 RT: Feb-Apr 2006 HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105! Recurrence/Surgeries: Jan & Apr 2010 Biopsy 2/2011: Moderate dysplasia Surgery 4/2011: Mild dysplasia Dental issues: 2013-2022 (ORN)
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