| | Joined: May 2010 Posts: 48 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: May 2010 Posts: 48 | Hey Folks, sorry that I haven't been on this site in a bit. i do tend to hang on the American Cancer site also. I am 3 months post treatment. Of the pain meds, no more pain in mouth. I do have the dry mouth worse at night. can't seem to get rid of the white build up on tongue but the insist it isn't thrush, but I do drink a lot of vanilla ensure so maybe that is what it is. Taste is probably at 50%, I can taste all yogurts, i can eat biscuits and gravy, pot pies, veggies, chicken and steak but slow. Scallops go down good. I do have stiffness in neck and get intermittent fluid build up in neck from lymph drainage. Depression is probably the hardest, as you know I'm single and that seems to bother me more than the cancer! I want to live again, I want to love and be loved and I'm not sure if and when that will happen ever again! What's the purpose of beating cancer if you have to be alone!  Charles
Last edited by Irishgypsie; 10-01-2010 09:07 AM.
Charles
HPV +16 Right Tonsil SCC with 1 Right lymph node. Tonsillectomy and neck resection.
Got 33 radiation doses via tomo machine (58 gry to back of throat, 65 gry to right neck, and 56 gry to left neck) with 2 cisplatin and one carboplatin due to possible hearing loss.
| | | | | Joined: May 2010 Posts: 48 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: May 2010 Posts: 48 | Oh yeah I forgot to mention, I had my 1st PET scan post treatment on Tuesday. I could call and get results today but I am waiting for my Dr.s appointment on Monday. I'm going to the Bills/Jest game on Sunday and I just want to enjoy the weekend and try to forget about stupid cancer for a day if that's possible!!
Charles
HPV +16 Right Tonsil SCC with 1 Right lymph node. Tonsillectomy and neck resection.
Got 33 radiation doses via tomo machine (58 gry to back of throat, 65 gry to right neck, and 56 gry to left neck) with 2 cisplatin and one carboplatin due to possible hearing loss.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Nice to see you posting Charles. Glad to hear you are doing so well. You are very fortunate to be eating so many different things. Recovery is a long process. There are many of us here who are single. All good things come to those who wait  Best wishes on your continued improvements.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Oh yeah, I forgot. If you are up to it and feel like taking a drive. Not sure exactly how far away you are. In Bethlehem PA tomorrow there is an oral cancer awareness walk. There will be several OCF members there. Would love to see you there.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Sep 2010 Posts: 26 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Sep 2010 Posts: 26 | Hi Charles,
Congratulations on finishing treatment! Go ahead and enjoy that game, you deserve it. Praying for a wonderful PET scan report on Monday for you!
CG to 44 year old husband, Dx: 9/23/10 SCC T2N0M0 (Right Tonsil)
Radiation only started on 10/13/2010
13/33 Radiation Treatments done!
| | | | | Joined: Sep 2010 Posts: 179 "OCF Down Under" Senior Member (100+ posts) | | "OCF Down Under" Senior Member (100+ posts)
Joined: Sep 2010 Posts: 179 | Hi Charles,
so good that you can eat so many things!! I look forward to that day (i'm four weeks out of treatment). Congratulations!!!
I think we all experience the same thing whether we are single or with partner (although there is more support with a partner). I'm married and sometimes worry whether my relationship will ever go back to the way it was before. All the mucus, tiredness, depression etc is not exactly the best for a romantic relationship. I'm struggling to come out of the mess so maybe my husband can maybe see a hint of the woman he married.
I'm sure time will slowly make it easier for us. As one wise OCF member said to me "Cancer does not mean the end of life,love and laughter". I have no doubt that you will find love again Charles, its just a matter of time. Like Christine says "Good things come to those who wait".
Keep us posted with your updates.
Best wishes
Minh
35 Yrs old
03/10 SCC T1-T2
Partial Glossectemy end March - margins not clear enough.
While waiting for resection - cancer returned,2 new cancerous lumps
Re-section End May & flap from cheek attatched. Margins clear.
Mid June - 4 teeth out
Mid July -32 Rads and 3 Cisplatin
6th Sept 10 Finished Treatment!!
| | | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 | Charles, congrats on your continued improving health. I well know what you're going through, the single stuff. I did the whole surgery-radiation-aftermath on my own and I know it's not easy. Just keep having positive thoughts!
Btw I'm from Miami originally. Alas, Ihink the Jets will kick your #$^ tomorrow... sorry about that. But then, the Pats will kick ours Monday night!
Courage.
David 2
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: May 2008 Posts: 357 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: May 2008 Posts: 357 |
...Btw I'm from Miami originally. Alas, Ihink the Jets will kick your #$^ tomorrow... sorry about that. But then, the Pats will kick ours Monday night!
You're right about that:o)
Marlene -
Marginal mandibulectomy 6/17/08 resulted in DX of Stage I SCC - gingiva (3 mm) right mandible, buccal side. Clear margins. Occasional social drinker. Smoked last cigarette in 1979. Clear pet: 12/08; 7/20/09. Yay!
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