| | Joined: Sep 2010 Posts: 6 Member | OP  Member
Joined: Sep 2010 Posts: 6 | Hi all, It is the last week of radio and chemo and my boyfriend has just been admitted for at least the remainder of his treatment, we had a terrible weekend where he suddenly seemed to go downhill, being sick and in such pain with the burning in his mouth. He looks so thin and ill and as much as I want him home I know deep down this is for the best. The doctor today has cancelled his chemo (it was his last one) as he is too sick and they do not want to risk him being sick again, does anyone know what affect this could have? going home alone again after his 3 weeks stay for surgery and then getting him back is so awful.
cg to boyfiend stage 3 tongue, removal and flap surgery june 2010. 12 teeth removed, 6 weeks radio and chemo started 23rd Aug 10.
| | | | | Joined: Feb 2010 Posts: 235 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Feb 2010 Posts: 235 | Many people here have said that the last week and following week or two of treatment was the worst. I know that was true for my husband. Everyone would talk about this "light at the end of the tunnel" where he would get better. I'd look at him so thin and tired and it was hard to imagine. But as I type he is getting ready for a full day of work and humming under his breath!!!
Hang in there.
CG to Spouse BOT, Chemo and radiation started on March 29,2010
Ended on May 14,2010. LET THE HEALING BEGIN!!!
| | | | | Joined: Sep 2010 Posts: 6 Member | | OP Member
Joined: Sep 2010 Posts: 6 | Thank you, I am looking forward to the day he goes back to work and a form of normality although it seems so far away, it seems that with every positive there is a set back and you end up feeling useless
cg to boyfiend stage 3 tongue, removal and flap surgery june 2010. 12 teeth removed, 6 weeks radio and chemo started 23rd Aug 10.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | At least in the hospital they will be able to make sure he gets the required calories, hydration and meds. If he's like the majority of us he will get worse before he gets better in about 3 weeks or so.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jan 2010 Posts: 142 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2010 Posts: 142 | I finished radiation on May 5th.I did not have Chemo but I did have a very bad reaction to pain meds that put me in ICU for 11 days. I returned to work Very part time in June, full time in July and I swear I feel better now than I have in years. It might have something to do with losing 25 pounds or a new attitude or a combination. But I feel very good these days.
55 12/17/09 High Grade Muceopidermoid Carcinoma Alerted by Largo my Mini Schnauzer
1/18/10 Clr PET
1/27/10 Surgery found Perineural invasion
3/22/10 Began Rad
05/05/10 34 rads
8/19/10 Clr Pet Scan
12/13/10 Clr Ultra sound/biopsy
5/4/11 MRI Clear
8/2/11 All Clear
5/25/12 All Clear
6/3/2016 All Clear
5/25/2025 All Clear
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | I had my last dose of chemo cancelled also. Several others on here have had that happen too. Hope he improves soon. The last few treatments are brutal. Its almost finished, hang in there!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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