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Joined: Mar 2010
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You will speak. You will eat. You will define a new normal for your life. The experience is different for everyone,because we all heal differently.

My husband, kent (43), who watches this site, had surgery 3-17-10 for stage 4 SCC tumor on his tongue that started at the base and grew quite large. In an 8-hr surgery Drs. resected and reconstructed 2/3 of his tongue and floor of his mouth with a flap from his forearm, like yours. They took 49 lymph nodes as well. Abt. a month after surgery he started treatment with two chemo treatments and 33 radiation treatments.

He is now (6 mos later) back at work full time, going to the gym and eating normal foods (slowly), but still drinks Carnation Very High Calorie for breakfast b/c it is quick & convenient. He went thru all this without a feeding tube, fortunately. He did 4 sessions with a speech therapist that helped. His eating food is slow, but he's doing it because he is determined. He is a good healer and has a lot of will and resilience. The scar on his forearm is hard to look at but it's fading.

It has been hell on both of us, but there is life after this type of surgery. Get good nutrition in your body, rest, stay active if you have the energy, drinks lots of water and just take one day at a time. Progress seems slow, but you make it.


Kent
Age 42/DX-SCC/T3-N2-M0 on left side of tongue 2-24-2010/Resection & reconstruction 3-17-2010/Reconstructed 2/3 of tongue with wrist tissue/49 nodes removed; 2 had cancer cells; one was encapsulated/ Incidental finding: Papillary Thyroid cancer/Treatment: 2 wks of chemo with 6 wks of rad
Joined: Sep 2010
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Went to the Surgeons today and everything looks good. Arm graft is looking good. Trach is already closed. Had some stitches removed from tongue. Introduced applesauce but it is so hard to get it to the back of the throat or swallow! - Wants me to see the radiologists to see what they think about the dysplasia.He is pushing, so I am guessing he thinks I need to.I know it is early but I am frustrated!


54 Year Old Female Non Smoker - Non Drinker
Stage 3 Squamous Carcenoma middle tongue, Surgery 9/3/2010 15 hour operation, Neck distention,right - 19 lymph node removed/ok -some tongue dysplasia - free flap/forearm, left arm, skin graph-thigh, lip split/jaw 1 tooth removed/PEG
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