| | Joined: Sep 2007 Posts: 60 Likes: 2 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Sep 2007 Posts: 60 Likes: 2 | I have not been on here for a long time just been feeling low with new fight I have been going through.
on 9/27 I was going in for a nice simple biopsy on the right side base of my tongue. Since the : mass showed hot on the scan, he felt that it should be removed. So my eating went back to feeding tube again. Now I am slowly eating by mouth.
The results came back as precancerous and had to wait for the tumor board to meet
Found out the other day no chemo but I will need to due Pet Scans every 3 months. So I feel a lot better. But I do not know what to do if comes back a
third time.
I knew the healing was not going to be easy. Just hope someday I could get to
a good hamburger and fridays.
But take each day as a new day.
Round 1 5/2007 - 35 Rad treatments and 6 chemo of cisplatin
TPN feeding for 5 months during treatment and after.
Tumor was on the right side of the tongue.
Round 2. Tumor on the lower back right jaw area. Surgery on 3/12/2010 to remove the tumor, rebuild the jaw and some work on the back tongue.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | That's good but do keep on top of this.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Sorry I missed your post. Boy you sure have had a rough time of it. The mandibulectomy is one rough surgery to get thru. It takes a very long time to recover. Its not something that can be rushed. You are doing excellent if you are able to eat by mouth. Its two steps forward one step (sometimes two) back for a long time. Keep your positive attitude! Please dont live your life worrying about a recurrance. IF it would happen you would deal with it.....remember IF is the word. Ive gotten thru it 3 times in 3 years, just proof that it really can be done. We all seem to make the best of the hand we are dealt, thats all we can do. Being a survivor is a great thing to be 
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Sep 2007 Posts: 60 Likes: 2 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Sep 2007 Posts: 60 Likes: 2 | Thank you Christine, you have been through a lot. Taken each day and keep the head up. You are so right don't think of It coming back. I trying to learn take each day a new day in my life and live it to the fullest. Thank you again.
Round 1 5/2007 - 35 Rad treatments and 6 chemo of cisplatin
TPN feeding for 5 months during treatment and after.
Tumor was on the right side of the tongue.
Round 2. Tumor on the lower back right jaw area. Surgery on 3/12/2010 to remove the tumor, rebuild the jaw and some work on the back tongue.
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