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Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
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Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Try Carnation Instant Breakfast VHC. It has 560 nutritional balanced calories in a 8 oz can and will cut the misery and the time in feedings. You can order it thru your pharmacy dept but you don't need a prescrip for it but some have suggested that if you get a prescription for it, your insurance company will pick up the tab. I only paid about $32.00 per 24 can case at Walgreens. That's only $8.00 a day for 3360 calories. You can also order it online from Amazon and if you go thru Oral Cancer Foundation we get a kickback.

I lived on that stuff well into my 2nd year of recovery. During Tx that's all I drank, other than water and post Tx I drank a can mixed half and half with whole milk with each meal to make sure I was getting all the calories and nutrition I needed since eating was soooo boring.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
Susan, mix the carnation vhc with a can of water. I use mine with a can of carnation, a can of the prescrition kind and 2 cans of water. Raise the head of your sisters bed up and have her sleep propped on 3 pillows. Set the pump for 40 ml per hour, which will take forever to run. After a few days if she is feeling ok with the 40 rate, move it up to 60, then 80 etc til you hit about 160. If she gets ill, back it down and gradually build it back up. It takes alot of playing around with it before you will get the hang of what works. The syringe and graviy methods are too much for me to tolerate, Ive never been able to use those. Glad to hear I was able to help you with peg info.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Apr 2010
Posts: 201
Gold Member (200+ posts)
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Gold Member (200+ posts)

Joined: Apr 2010
Posts: 201
Thanks so much for your help! I don't know where I would be without you guys.


CG to Sister (42). Smoker quit @ diagnosis Dx 4/20/10 SCC T2N0M0, Rside of tongue Hemigloss R neck dis, all nodes removed 6/2/10, Trach and NG in, home 6/8/10,8/18/2010 start erbitux x6, 30 IMRT end 10/11/10 with only 3x erbitux due to reaction and one week off of rads
1/10/2011 Clear PET!!!
Joined: Jul 2010
Posts: 10
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Joined: Jul 2010
Posts: 10
I didn't have a PEG put in. I drank Carnation Instant Breakfast (just the regular powder packets), Ensure, Boost, Special K Protein and was able to eat and taste (somewhat) oatmeal, scrambled eggs, mashed potatoes, vegetables and of course milk shakes. The only meat that still had taste for me was liver - I liked liver before diagnosis so I ate it once in awhile. I still drink Carnation Instant Breakfast every morning. The most weight I lost was 9 pounds.


SCC on right tongue T2N1M0 Non-smoker, non-drinker age 55 female. Partial glossectomy April 2009,July 2009, Jan. 2011, lymph nodes removed, radiation & chemo 2009
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