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Joined: Mar 2008
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Sandisays

I thought about checking the Jevity ,because you are right, the TSA doesn't care about it in your luggage. When I weighed the jevity cans I would need for a week, they came to 35 pounds which would have meant either wearing the same clothes for a week (worked for me, but my wife nixed the idea) or else checking a second suitcase. It was cheaper to buy Ensure the whole week rather than pay $25 each way for $50 and much much easier.
As for "hunger", I don't really feel it either. But now that I am using the syringe and not even one gravity bag, I do get a "full" feeling. It's a blessing not to be "hungry" as apparently some G tube people still feel all those hunger pangs. My guess is that neither of us need any more problems or disappointments in our lives, so I'm glad not to be "hungry".
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Feb 2009
Posts: 22
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Just a quick thought, you'd only have to pay one way because you would have eaten it,lol. Buying Ensure is the best idea when you are going away for an extended period and know that it would be available to you, but $25. one way at the price of Ensure would probably come out to a little more than $25 for a week. What is the difference between these different tubes they talk about ie. G tube, peg and feeding tube, I thought they where all the same thing. I guess I don't know what I have.

Last edited by sandisays; 08-26-2010 05:53 AM.
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Carnation Instant Breakfast VHC b a b y !!!!!!!!


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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Sandisays

And just throw away the second suitcase? The airlines charge even if its empty. And we don't pay extra to board early so a duffel bag full of jevity won't find any room in the overhead.
Actually, we got the Jevity on sale at Albertsons and each time gave us a $5 coupon good for next purchase so it wasn't bad

PEG, G, J tubes are all just feeding tubes. A PEG is just a G tube done thru an endoscope. My throat can't handle that so they need a fluorscope so technically its a PG tube but nobody calls it that. Both PEGS and G tubes go to the stomach. A J tube goes to the lower intestine instead of the stomach.
Charm
Charm

Last edited by Charm2017; 08-27-2010 09:28 AM. Reason: peg talk

65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
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Have a nice flight and enjoy the trip Charm. My daughter just offered to buy me a couple of cases of carnation. That I would love to have. Thanks for the tip about the medicated gel for my scalp. I bought some and am using it.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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I've been following the blogs of people with PEGS and feeding tubes and here is a recent post that explains her trepidation on an upcoming flight and a prior bad experience with TSA doing a body search on her due to the feeding tube. As regular readers here know, I avoided most of this by ignoring TSA shouted demands to keep my hands up and instead just pulled up my shirt to let my feeding tube and it's eight inch extension just hang out - (if you got it flaunt it)
[quote]So, will a tube feeder�s equipment alert TSA to check my bag? Well, my four syringes look like dynamite sticks on a xray. The extra Mic-key button kit (insurance that nothing goes wrong w my system) looks like a boxed up bomb. Should I just open the kit and take out what I need? After all, most of the stuff in it is for bed ridden feeders. I hate tearing open a $350 kit to get the single peg button out, just in case. It contaminates the button and allows the little balloon device to dry out and possibly crack when it�s installed. I�ve already thrown away one of these devices after a long trip. It was just too dangerous to use it later.
Then there�s the 18� snap on feeding tube itself. That will look mighty suspicious to an alert agent. And the pipe cleaner I use to clean it with. Could that be fuse material?And when they unzip one side pouch, twenty packets of small and large rayon sponges will eject like somebody just broke a pi�ata.
And when they find all that incendiary looking stuff, they may do the full body search AGAIN. I�ve been through this when my doctor�s note failed to protect me from probing fingers. One of the female TSA inspectors choked up when she shared w me a story about frisking an eight year old tube feeder. She didn�t realize how painful tubes are when disturbed, and she frisked right over the inflamed area, setting off waves of pain in the little girl. Unfortunately for me, what triggered this story from her was her fellow agent frisking over my tube area. I don�t know if it was the wince of pain or the muffled yelp, but both agents knew they�d hit a bad place. Dear God, I hope I get lucky this time and don�t go through the full body frisk.[/quote]


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Jan 2006
Posts: 756
Likes: 1
"Above & Beyond" Member (500+ posts)
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I dread flying now and I don't have a peg - just more medications than before OC.

Charm, I enjoyed your "solution" to avoid the TSA body search - it would make a great video!! Just reading it made me laugh and I really needed a good laugh today!


Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
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