| | Joined: Nov 2009 Posts: 493 Platinum Member (300+ posts) |  Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 493 | I really had less trouble with my surgery than I had with the chemo and radiation. I had the surgery first, then the radiation and chemo. I hope that MD doesn't wish that he had gone ahead with the surgery. My husband with me almost every day as well, and the few days when he wasn't, my sister came with me.
Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
| | | | | Joined: Mar 2010 Posts: 126 "OCF Canuck" Senior Member (100+ posts) | | "OCF Canuck" Senior Member (100+ posts)
Joined: Mar 2010 Posts: 126 | Maybe MD and his wife *are* reading this forum and getting some comfort from it, even if they don't think they can participate. We just don't know.
We should all keep that in mind, and try and keep our comments supportive and compassionate, no matter what anyone thinks about the way he and his family are handling the situation - criticism of that is not going to be helpful to them.
Anne
Anne - CG to Gordon (59), non-smoker/non-drinker. SCC, BOT, HPV 16+, stage 3. Jan./10 - radical neck dissection to remove 48 lymph nodes, 1 node pos. Apr. 23/10 - finished 35 rad. and 3 cisplatin. Jul. 22/10 - PET scan clear.
| | | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 | And further to Anne, and forgive me if someone already made this point, but the media does have a tendency to edit, distort through selective context and just plain dissemble. And the more famous the subject, the more sensational.
D2
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Sep 2009 Posts: 229 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Sep 2009 Posts: 229 | My daughter bought the magazine so I was able to read the article. Personally, I found nothing wrong with the family dynamics in the article.
I'm all for whatever works for your family. Not any one method is the "right" one when you're dealing with cancer, it's whatever works.
Patty
08-10-09 Partial Glossectomy w/suprahyoid neck dissection
SCC T1NOMX Stage I | 46 years old
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