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| | Joined: May 2007 Posts: 622 "Above & Beyond" Member (500+ posts) | OP  "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 622 | Well the cramps from the IMRT have set in and are getting really frequent. Started about 1 - 2 a week and now I am up to 5 - 8 a day, quite annoying. One of the Doctors has recommended Botox treatments to relieve some of the cramping.
Any of you have any experience with this?
Kevin
18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking | | | | | Joined: Dec 2009 Posts: 17 Member | | Member
Joined: Dec 2009 Posts: 17 | During my nursing career have worked with use of Botox in research studies for tight vocal cords of spasmotic dysphonia and muscular contractions. In those instances it worked well but hadlimited duration, usually about 3 months or less. Have not experienced use in neck muscle contractions from radiation. With
Use of Botox is often accompanied by physical therapy for muscle treatment or speech therapy for vocal cords. Has your doctor suggested any additional physical therapy, exercises, or heat treatments?
Linda
Hx of stage IV non-oral cancer tx with radiation, chemo & surgery in 2005. Currently a research nurse with National Institutes of Health working on a clinical trial using gene therapy for radiation-induced xerostomia. [email protected]
| | | | | Joined: May 2007 Posts: 622 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 622 | Hi Linda
They have suggested massage and stretching exercises (which I am doing) and said if they got more frequent (which is happening) they may add Botox to the mix. I just found this to be an interesting twist.
Thanks for the info !
Kevin
18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking | | |
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