| Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | I found this on the Oley Foundation web site that deals just with feeding tube patients. It was written by a "Christine" (although not OCF's wonderful Christine) anyway for those with a feeding tube, here is a smile [quote]The Joys of Tube Feeding
We all have difficulties and complications with our G- and J-tubes, but I thought it would be neat to create a list of why it�s totally cool to have a G-tube and all the ways it is a bonus in my life. So here goes:
1. I never have to worry about having food in my teeth! No fear of the embarrassing comment, �By the way, you�ve had a piece of spinach on your tooth for the last half hour.�
2. When on a canned diet, there�s no grocery shopping, food preparation, refrigeration, microwaves, or ovens involved! No mess, no dishes. I just pop a can lid.
3. More time! My day is not spent eating, buying food, or waiting in line.
4. Although I believe I will be better off on real food, there�s no worry about balanced nutrition, hidden calories, excess sodium or sugar, or unhealthy fat. It�s all balanced right there in my can. Just syringe and go.
5. It doesn�t matter what the food tastes like. I can completely bypass the taste buds and gag reflex.
6. I can keep hydrated without a fuss if I�m diligent. Eight to ten glasses of water a day? No prob! I just squirt it through my tube.
7. I have the most unique body piercing ever. Others may have rings, studs, or spikes. I�ve got a piercing that looks like a beach ball valve. Besides, regular piercing is for wimps. I�ve got a piercing as thick as a pencil right through muscle and an organ wall. So I win the toughness contest.
8. If the tube is ever removed, I will have two belly buttons. How adorable is that? Not to mention unique. Marilyn Monroe had six toes, and I�m pretty sure two belly buttons is more rare than that. I�m special. As a kid, I was always distressed that I didn�t have freckles. But I think two belly buttons makes up for that.
9. Carrying the boxes of formula is good exercise, and especially great for the biceps. Tell me you get a calorie-burning workout lifting a hamburger.
10. I am a dog�s best friend. The formula smells like gourmet canned dog food apparently, and dogs sit in an adoring circle waiting for me to throw my cans into the recycling bin so they can dash over and lick off any stray drops. Feels nice to be such a source of happiness.
11. I have the perfect defense against intruders. If any robber stands in my doorway with a pistol, I will aim the end of my tube at him, uncap it, and vent! He will immediately leave and I will be a hero. It�s my superpower.
12. Packing for lunch is incredibly easy. What should you bring for lunch? Can, can, and can. Mission accomplished.
13. When empty, the boxes the cans come in are perfect for sorting files into.
14. Never again will I have to suffer through anyone�s burnt, bland, or bad cooking.
15. No worry about overpriced food at restaurants, airports, or tourist destinations.
16. If I could just attach a squeaker or flashing light to my button, I could entertain little kids for hours.
17. And finally, and seriously, it keeps me alive. Best bonus of all, I would say.
� Christine, aka �Jackrabbit� [/quote] 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Feb 2009 Posts: 22 Member | Member Joined: Feb 2009 Posts: 22 | ASll of those are good thoughts and true thoughts especially the last one, but I do miss cooking. Not every day mind you but sometimes. I am amazed at how much time it use to use up to shop, haul, store. cook and clean up. And since I live alone I have kitchen cabinet space to spare. | | | | Joined: Aug 2006 Posts: 294 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Aug 2006 Posts: 294 | That list really hits the "nail on the head". In addition to the "two belly buttons" remark, depending on the company I'm around, I sometimes let them think it is a healed gunshot wound.
Bill D.
Dx 4/27/06, SCC, BOT, Stage III/IV, Tx 5/25/06 through 7/12/06 - 33 IMRT and 4 chemo, radical right side neck dissection 9/20/06.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Good find Charm I especially found #11 to be very comical. I was picturing squirting my tube at someone and what a reaction they would have. LOL ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jun 2009 Posts: 440 | Too funny...my favorite is #7!
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0 Elizabeth, 33, mother of 3 girls (4,7, &8yrs old) 3 rds of chemo(Carbo/Taxol) Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube. 30 rds of rads with weekly cisplatin SCANS ALL CLEAR! OCF Regional Coordinator of San Antonio Walk
| | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | This is just so-o-o-oo funny! I like the belly button one. Reminds me of when I had to substitute drive a school bus for a friend of mine who had to be out for 2 weeks because her 3 yr.old son was having surgery to give him a belly button. Previous surgery had removed it and he was so upset at the loss of his belly button that they had to have a second surgery to construct one for him. I learned how important BB's are and to have two, well that is just awesome!
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Jul 2009 Posts: 453 "OCF Down Under" Platinum Member (300+ posts) | "OCF Down Under" Platinum Member (300+ posts) Joined: Jul 2009 Posts: 453 | I can so relate to number 9. I remember delivery day, lugging those boxes of 2cal around, trying to find space for them. Then having to pick them up and move them around when we needed another can out of them. Great exercise. This list is great Charm, a real find. Even as a carer I can relate to it in more ways than one.
Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone No surgery Teeth removed 06/07/2009 radiation 13/07/2009 x 7wks chemo 15/07/2009 x 3 Cisplatin last TX 28/08/2009 25/11/2009 PET-lymph node activity. 08/01/2010 CT Scan-ALL CLEAR 03/03/2010-Peg removed 01/2013 left side of Jaw removed and replaced with pectoral flap. 23/12/2020 scan show lesion in tongue 01/2021 SCC stage 3 base of tongue diagnosed 01/03/2021 chemotherapy started.
| | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | "OCF Canuck" Patient Advocate (1000+ posts) Joined: Sep 2006 Posts: 1,357 Likes: 5 | How inventive - love it - Charm you are the BEST
Hugs
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Charm - your list really had me thinking, especially # 2 and 3. Whenever my kids come over for dinner there is always so much preparation, cooking, etc., I'm pooped out by the time we sit down to eat. And I don't let anyone help clean up afterwards, because I'd rather just relax and visit with them. So I'm thinking next Thanksgiving, maybe I will just buy a a case of Slimfast and hand everybody a straw.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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