| Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Feb 2004 Posts: 598 | So, just over three years out from the end of treatment, I went to one of my 3 semi-annual check-ups this one with the MO. Blood draw, Chest X-Ray, Exam -- all look good. Early last week his office called, and the radiologist saw a small nodule at the base of my left lung. So, off to CT I went last Thursday.
Now, I went through the lung nodule thing before, actually just before I had my OC diagnosis. Two years of serial CT scans and they all either disappeared or were stable. So, rationally I know that there are lots of benign reasons for these things. My wife and I have also both had upper respiratory bug this summer. I also rationally know that if it were malignant, likely that it can be surgically handled, with good results.
Nonetheless, my mind has been a mess for the last week. I feel especially sorry for my wife, who has to put up with all this worry again.
Just an update. Any words of wisdom would be appreciated. I'll keep you posted.
Jeff Jeff SCC Right BOT Dx 3/28/2007 T2N2a M0G1,Stage IVa Bilateral Neck Dissection 4/11/2007 39 x IMRT, 8 x Cisplatin Ended 7/11/07 Complete response to treatment so far!!
| | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Jeff - I can certainly emphathize with your wife. My son had a similar experience just recently when a "spot" was discovered on his chest Xray. He went for CT scan and waiting for results was a crazy-maker. But the CT indicated the "Spot" on his lung was just scar tissue from the pneumonia he had 4 months ago. What helped me thru the waiting was trying to keep busy with physical things like power walking, mowing lawn, etc. When I found myself really down I would look at the clock and allow myself only 3 more minutes of compassion for our situation and then force myself to think of something else. Paul (my son) had a lot of help from his girlfriend, too, to distract him for which I was really grateful. So hang in there, try to think of the good stuff like all the good check-ups you've had, and keep us updated.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Sep 2009 Posts: 14 Member | Member Joined: Sep 2009 Posts: 14 | Jeff, Best of luck to you. I just heard from my MO that last weeks CT of my chest and neck is showing something suspicious in my right lung. He is ordering a Pet scan ASAP. I'm a little worried, since this was quite unexpected. Any others out there who can offer advice please? SCC left tonsil dx 9/15/09. finished 7 weeks chemo and rad. 11/20/09 PEG 9/09 to 4/10. 2/10 Pet was clean. HPV 16+; non-smoker.
SCC left tonsil dx 8/15/09. finished 7 weeks chemo and rad. on 11/20/09. PEG tube 9/18/09 to 4/17/10. HPV 16+; non-smoker. CT Scan and F/up PET on 4/5/11 showed positive mass in R. Lung. Surgically removed and biopsy negative 5/16/11. | | | | Joined: Mar 2002 Posts: 4,918 Likes: 64 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 64 | I have had three lung scan scares in 10 years. None turned out to be anything serious. Remember that that PET will show a hot spot from inflammation and infection as readily as cancer and you can't tell the two apart.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | | | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Feb 2004 Posts: 598 | Thanks for the input, all.
Brian, I appreciate the reminder. This showed up on X-Ray, but apparently only after radiologist went over it with a fine toothed comb. My MO,who is pretty sharp on this stuff, didn't see anything in his reading of it.
CT Results are pending, likely because MO knows that PET would likely be of little help at this juncture.
As Roseanne-Roseanna Danna said "It's always something!" Jeff SCC Right BOT Dx 3/28/2007 T2N2a M0G1,Stage IVa Bilateral Neck Dissection 4/11/2007 39 x IMRT, 8 x Cisplatin Ended 7/11/07 Complete response to treatment so far!!
| | | | Joined: Oct 2006 Posts: 160 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Oct 2006 Posts: 160 | Jeff, Just wanted you to know I have also been dealing with a spot on my right lung. I had one show on the first Pet scan one yr. after treatment. The next yr, it didn't show. Last year it showed up again. I have been referred to a specialist, and he's done 2 CT scans, it shows but isn't getting any larger. He said he wants to watch if for a couple of yrs. I'm getting leery about all the scans, but there's always that "what if" in the back of our minds. I just saw my H&N doctor yesterday for my yearly visit, and things are all good. So being 4 yrs clean I'm done with the Pet scans. So glad. Anyway just wanted to share that maybe the lung thing is common. Hope all goes well with you. Linda
Dx3/20/06 SCC,BOT,1N Tx:5cycles Carbo/Taxol, Rad:35x, brachytherapy:6x, completed 7/24/06
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Jeff, wishing you all the best. I am so glad to read you are handling this with such logical thinking. Its not always easy to see things so clearly and rationally. Hope you get the results soon and that everything is ok. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | You dont need our wisdom jeff you have shedloads of your own,but you can certainly have my thoughts and wishes for another good outcome xx
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Feb 2004 Posts: 598 | Well, just got off the phone with my MO's assistant, and the news is good. CT showed a 5mm nodule in the left lower lobe, which they are just going to watch, but they strongly suspect is inflammatory or fungal in nature, particularly given my past history of these small nodules. They will have pulmonary doc follow me, but nothing urgent or imminent.
Thanks for all the support. Damn, I have a real love/hate relationship with these follow-ups!
Jeff SCC Right BOT Dx 3/28/2007 T2N2a M0G1,Stage IVa Bilateral Neck Dissection 4/11/2007 39 x IMRT, 8 x Cisplatin Ended 7/11/07 Complete response to treatment so far!!
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Jeff, thats excellent news. So glad its nothing to worry about. Now you know what it is. How often will you need to get this checked? We are all family here and stick together  ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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