#12064 09-10-2007 04:29 AM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) |  "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Beating his drum right to the end .God Bless you Petey.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#12065 09-10-2007 06:07 AM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | Leslie: Thanks for posting this link. Many of us are still numb from the news of Petey's passing. He was truly one of a kind and I, for one, will never forget him and his many words of wisdom and experience that has helped untold OC victims.
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
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#12066 09-10-2007 08:58 AM | Joined: Sep 2002 Posts: 642 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2002 Posts: 642 | Friends,
Being one of the lucky ones who is doing well after 5 years, I don't visit the forum nearly as often as I used to. I checked by today and am very sad to see that the irrepressible PeteyB is no longer with us. He was always concerned for others and very upbeat. Pete apparently handled everything well, including the journey to the end.
We can all learn from him.
I am also a little amazed that over 4000 people have joined this forum since I did so in the summer of 2002. That is a tribute to all of Brian's hard work in drawing attention to oral cancer and to this site, but, at the same time, a sad commentary on the continuing spread of this terrible disease.
Take care all,
Danny G.
Stage IV Base of Tongue SCC
Diagnosed July 1, 2002, chemo and radiation treatments completed beginning of Sept/02.
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#12067 09-10-2007 10:36 AM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Thanks again, Leslie for always being on top of the news.
Even after his death, Petey's words and his message are still getting out there.
What a guy!!
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#12068 09-10-2007 12:32 PM | Joined: Mar 2002 Posts: 4,918 Likes: 65 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 65 | I might add to this about the article... this wasn't going to happen at all. They were going to write a couple line obituary and be done with Petey. You'd think that the writer that worked with Petey on the beginging of his story (that he had to chase her for, and create interest in her for, in the first place) would want to write something powerful to end the story. Something that would speak to the issues, something that would show the impact that he had. Something that would talk about how he fought for others that will get this disease. But no. OCF's PR advisory Kari Kramer had to call the writer in FL and convince her to do even this little piece. In the writer's mind Petey was already yesterday's news. We couldn't even interest her in doing a piece that talked about how the poor guy ended up dying for a disease, -that had anyone in Florida pulled their heads out of the rear ends earlier in the process - he might have survived. It all just sucks. Sad does not even describe how I feel about it all. I hope this writer stays at her podunk newspaper and never gets a break into a real news market. She wouldn't recognize an important story if it bit her on the ass. I guess how tired I am of some of this is showing through....
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#12069 09-10-2007 02:32 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | What a sad state of affairs that it had to take prodding from the OCF, via Keri, to get something into the paper. I guess Petey's death wasn't going to help them sell papers.
Once again, we can assume that the almighty buck is always the bottom line.
It sure does suck.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#12070 09-10-2007 07:04 PM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Funny how death can be like that.
When Robin died The General Dental council asked me if i still wanted to pursue our complaint against his Dentist. Why wouldnt I? As if his death just closed the door and it could all be forgotten about.
They just dont get it do they.It was always going to be too late to help Robin and its nothing to do with money (we are not suing)
ITS TO TRY AND SAVE THE NEXT PERSON WHO SITS IN HIS CHAIR.Its about education, awareness,giving people a fighting chance,and the press of all people should have taken the opportunity to illustrate the point by using Peteys death to underline the importance of all the things he said.
God help us they can be so useful at times and sometimes they are just scum buckets.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#12071 09-11-2007 10:57 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Thank you Kari for pushing for the article. I am still so very sad about losing our beloved Petey, my gosh did that writer have a heart? Thanks again, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#12072 09-12-2007 04:31 PM | Joined: Feb 2007 Posts: 168 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Feb 2007 Posts: 168 | May your journey be peaceful. Thanks Petey. Those still here, you are in my prayers.
Lee, age 33, stage 4a, T2N2bM0, Tumor left tonsil (removed), 2 left side nodes removed (poorly differientiatied)total of 3 nodes involved. Treatment IMRT x33/ 2x Cysplatin completed. Good Health and Good Help to you.
Lee
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#12073 09-14-2007 03:45 AM | Joined: Apr 2007 Posts: 42 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Apr 2007 Posts: 42 | I'm going to miss you, Petey. You and I talked about riding bikes in Las Vegas when we both beat this cancer. My condolences go out to Petey's family...he is a great person. MKlein 
Oral Squamous Carcinoma in the right tonsil, Surgery April 5th 2007, Non Smoker, Stage 3. Started IMRT treatment May 30th.
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