| | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) |  Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Hi Bill. Thanks for the update. Excellent news about clear margins and lymph nodes!!!! Glad the operation is behind you and you are healing. Have the doctors allowed you to do any jaw exercises to avoid trismus? Thats how mine got so bad was not being able to exercise when had surgery. Hope you do not run into that. Good that you are able to eat a little bit. Thats pretty quick so it sounds like you must be doing pretty good considering what you have gone thru. Sorry to hear about doing rads again. Wishing you pain-free days of fast healing in the future. Please keep in touch. Your OCF pals will be here in your corner cheering you on 
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jun 2010 Posts: 111 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2010 Posts: 111 | hi bill. best of luck for recovery!! so sorry u have to do the god awful radiation again.
my mom, age 59.
12/08 surgery & 33x rad
4/09 recurrence
5/09 surgery & 35x rad
12/09 recurrence
1/10 surgery. peg tube, trach, fibula free flap
6/10 recurrence. double chemo treatments.
8/10/10 finally at peace in heaven
| | | | | Joined: Aug 2008 Posts: 38 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Aug 2008 Posts: 38 | I am now 6 weeks post surgery and 2 weeks into Chemo/Rads. I had RX #6 today, Chemo #2 Tomorrow. Eating is going pretty well. If I can chew it, I can swallow it, except for spaghetti. Fish is the best, green veggies are wonderful.
No serious mouth pain from RX yet, it is about a 1-2 right now. I will probably be on pain killers within a week, I can feel the effects piling on. Chemo is pretty light, Zofran totally took care of any side effects from the first bag.
Day by day,
Thanks.
Bill age 47 at Dx, non-smoker
1st DIAG: 8/06/2008 SCC BOT T4N1M0
2nd Diag 10/14/09 Mets in lungs
3rd diag 06/23/2010 Primary Site malignant
Hemi-glossectomy July 2
In surveillance post re-IMRT and Carbo. Lots of scar tissue, hi-FDG Uptake on PET, no lump. Feel Fine, CLEAR for now.
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