| Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | When I joined OCF, it appeared to be a staple of faith that there was a "maximum" of radiation and that once you had radiation for oral cancer, then you could not get it again even for a recurrence. I'm living proof that's no longer true. But I've found out the hard way that personal stories get discounted so I'm sharing a quote from Spring/Summer 2010 edition of Dr. Hong, Director of Radiation Oncology in the Virginia Hospital Center's Health Reach: [quote]CyberKnife: A Game Changer for Cancer: ...it allows us to enter uncharted territory and treat areas that we could not before...We can also treat sensitive areas that have been p;reviously irradiated... [/quote] CyberKnife is not used as the first treatment, that's the conventional IMRT but if God Forbid, you need more radiation after getting the "maximum", then CyberKnife can be used. The article goes on to describe what I personally experienced both ways [quote]Because CyberKnife is so accurate, higher doses of radiation can be administered in fewer treatments. An entire course of CyberKnife therapy can be completed in one to five visits, whereas conventional radiation requires 30 to 45 treatment sessions.[/quote] Not every hospital has CyberKnife but it was a much more pleasant experience than IMRT. I got 5 GY a session with CyberKnife instead of 2GY with IMRT - but you still need a mask with both of them. Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Apr 2010 Posts: 201 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Apr 2010 Posts: 201 | Thanks for the post Charm!! Really good to know. They have cyberknife in Sloan in NYC.
CG to Sister (42). Smoker quit @ diagnosis Dx 4/20/10 SCC T2N0M0, Rside of tongue Hemigloss R neck dis, all nodes removed 6/2/10, Trach and NG in, home 6/8/10,8/18/2010 start erbitux x6, 30 IMRT end 10/11/10 with only 3x erbitux due to reaction and one week off of rads 1/10/2011 Clear PET!!!
| | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Great to know, Charm!! There's also one where my son was treated in Knoxville, TN Thanks for letting us know.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Did you notice any differences in your treatment? Were you in for about the same amount of time? How about side effects? Were they any different the 2nd time verses the first? There are so few here who have had radiation twice that it is a very interesting subject for me. Thanks for sharing this info. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Christine
The CyberKnife (CK)radiation experience was better in every way from my original IMRT but some of that was due to hospital procedures and different chemo. The first and most obvious difference is completing treatment in only one week instead of 35 visits. Although the CK session was scheduled for an hour, it ended up being the same amount of time each day as the 10 minutes of IMRT since there was no backlog of patients, no machine breakdowns, and the fact that they only had to do one patient an hour in CK instead of the IMRT team racing to cram in 4 patients an hour. Without the Eribitux aggravating the radiation dermatitis, my face was not a peeling open sore sensitive to the mask. The CK machine itself looks more like a futuristic medical robot doctor than the IMRT machine and the lasers used to refocus the beams add to that. The CK was so pleasant, I actually fell asleep each time, something unthinkable in IMRT. I had heard about how great CK was for treating prostate cancer and I had asked to be treated at the very beginning with CK, but my RO said IMRT was more appropriate for base of tongue cancer. He said CK was to be kept in reserve "just in case". The only side effect that was the same with both CK and IMRT was the fatigue. No way around that bad boy. The CK actually hit me a little harder since each dose was two and half times higher than my IMRT. I hope with all you have been thru that this remains an academic question for you. Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | OCF news feed has an article about a brand new radiation technology - True Beam [quote]TrueBeam�s radiation delivery times are 50 percent faster than conventional �intensity-modulated� radiation therapy with up to a five-fold reduction in the number of steps needed to treat patients ...can complete a standard 40-minute radiation therapy in less than a minute for select patients[/quote] I know nothing about it except what I just read in the OCF news feed but it sounds very exciting for new patients. Right now it's only at Stanford University in Stanford, Calif., and at Memorial Sloan-Kettering Cancer Center in New York and University of Alabama at Birmingham Comprehensive Cancer Center so the moral of this message is: keep reading OCF news posts charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
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