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Joined: May 2010
Posts: 224
Gold Member (200+ posts)
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Gold Member (200+ posts)

Joined: May 2010
Posts: 224
I got my peg tube put in at the end of june and for about a month after My abdomen would cramp up about an hour after feeding and I could only tolerate 1 to 2 cans of feeding a day.

They tried to put me on the pump but same thing happened. I finally went into the er and they diagnosed me with pneumotosis intestinalis. They explained it as air bubbles in between my colon wall specifically my ascending and transverse colon. But then they said it was benign. So then i asked how air pockets could be anything but benign, and they said they arent air pockets, they are cysts. So I then asked them what caused it, and they walked away and sent me home saying it would go away on its own.

I went to my general doctor, he put me on some antibiotics because he said it was probably caused by a bacteria that came in shortly after i got my peg tube put in, and so far i feel better. I wasn't even able to go to the bathroom on my own untreated. so I don't know how it would have fixed itself.

Anyone else have a problem like this?


25/female at diagnosis
Dx;stage 3 SCC tongue 03/25/2010
Surgery 04/13/2010
Trach,ng tube, peg feeding tube
Hemiglossectomy, right side neck dissection, 40 lymph nodes removed. Free-Flap transplant to tongue.
30 rounds IMRT ended July 15,2010
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
I have not had this happen to me and havent heard of it ever before. Whatever is going on with it, I hope you are not in pain and that it gets fixed soon.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile

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