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| Joined: May 2010 Posts: 224 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: May 2010 Posts: 224 | I got my peg tube put in at the end of june and for about a month after My abdomen would cramp up about an hour after feeding and I could only tolerate 1 to 2 cans of feeding a day.
They tried to put me on the pump but same thing happened. I finally went into the er and they diagnosed me with pneumotosis intestinalis. They explained it as air bubbles in between my colon wall specifically my ascending and transverse colon. But then they said it was benign. So then i asked how air pockets could be anything but benign, and they said they arent air pockets, they are cysts. So I then asked them what caused it, and they walked away and sent me home saying it would go away on its own.
I went to my general doctor, he put me on some antibiotics because he said it was probably caused by a bacteria that came in shortly after i got my peg tube put in, and so far i feel better. I wasn't even able to go to the bathroom on my own untreated. so I don't know how it would have fixed itself.
Anyone else have a problem like this?
25/female at diagnosis Dx;stage 3 SCC tongue 03/25/2010 Surgery 04/13/2010 Trach,ng tube, peg feeding tube Hemiglossectomy, right side neck dissection, 40 lymph nodes removed. Free-Flap transplant to tongue. 30 rounds IMRT ended July 15,2010 | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | I have not had this happen to me and havent heard of it ever before. Whatever is going on with it, I hope you are not in pain and that it gets fixed soon. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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