| |
| | Joined: May 2010 Posts: 6 Member | OP  Member
Joined: May 2010 Posts: 6 | Hi All,
I had my last round of radiation on 06/09/10. For a few weeks after that I was completely on the peg tube, then I started eating soft foods and started going a little more advanced- pasta Alfredo Mac n cheese . Each meal was still a challenge but I felt like I was making progress. My swallowing therapist determined I needed to have a dilation. I was told it was painless, but I had heard that before about other procedures. I had the procedure done on July 28. While the pain deep in my throat was not excessive the pain around the top and back of my throat returned . I feel like this was a necessary procedure, but a set back on the progress I had made with my swallowing. I also need t have the procedure repeated again Sept 8 - they brought the opening to 13 and want to get it to 20. Any other experiences would be nicet hear about feeling frustrated over the set back, can't wait to be rid of the Peg tube, but now I realistically don't see that happening until October.
Tom
Tom Barry
Male 43 Years old Base of Tongue Cancer Stage 4
Diagnosed 01/20/2010
Also have Adult onset Stills disease
08/09/10 Clear PT Scan
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I get the scope and dialated every 3 months and I only had pain one time and for some reason eneded up in ICU for 1 day and nite . It was from a reaction from something. I have been getting these since 1996 and they do help with the swallowing for me. I'm about dure again soon. The time with pain was from the biopsies he takes.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 | Tom, I haven't been through nearly what Jim has had to endure but I have had 3 or 4 dilations, don't know if I'll need anymore or not, and only one was truly painful. My guess is they'll get a lot easier for you.
Glad you're making good overall progress.
david 2
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | |
| Forums23 Topics18,249 Posts197,141 Members13,326 | | Most Online1,788
Jan 23rd, 2025 | | |
|
| |
