| | Joined: Jun 2010 Posts: 10 Member | OP  Member
Joined: Jun 2010 Posts: 10 | hello, I'm the spouse of a cancer patient. My hubby has SCC of right tonsil, two lymph nodes and tumor on right side HPV 16 pos. started treatments 6/21/10. He has 6 more rad trtments of 35 and one more chemo out of 3 total. I've visited this forum and read many things that have been helpful in particular that we aren't alone. Question, what is a good treatment for the skin? He was using prutec, and now past three days pure Aloe. Any other suggestions? Thanks, Positive | | | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 | Positive, when my burns were really bad in the late stages the best thing my doc prescribed was Silver Sulfadiazine. I believe it's an old line medication, but it really did the trick for me.
Let us know how he's doing.
David 2
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Jun 2009 Posts: 138 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2009 Posts: 138 | My daughter cut leaves off an aloe plant and rubbed it directly on my neck right when I came out of radiation, before we even headed home. I had a minimum of burning. He's almost done with rads - great.
BOT-SCC Partial glossectomy 7/16/09.
Stage IV, Rt ND 10/2/09.
Teeth out 11/5/09.
Port/peg in, 11/20/09.
7 wks rad & chemo, end 1/22/10
lung, colon biopsies 1/9/11 - both cancer
colon resect surg 1/10/11
Folfox + Avastin - discontinued 6/11
lung surgery 3/13/12, 5/1/12
mets to liver and bones
passed away 9/4/13
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | I used prescription Beta-Val cream. My neck was burned and had large open wounds. It healed and didnt leave one scar. Many here have used Aquaphor.
Best of luck to your hubby with the last few rad treatments. He will start to feel a little better very soon. Usually about 2 or 3 wks after tx ends. Then let the healing begin!!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Feb 2010 Posts: 235 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Feb 2010 Posts: 235 | My husband used Eucerin(that stuff is so thick) initially . When it really got bad he also went on the prescription stuff. It really did help.
CG to Spouse BOT, Chemo and radiation started on March 29,2010
Ended on May 14,2010. LET THE HEALING BEGIN!!!
| | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | I used prescription Biafine. It cannot be used on open wounds, but it sure cleared up the burn in no time.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | | Joined: Sep 2008 Posts: 711 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2008 Posts: 711 | The silver sulfadiazine worked for me. This is my 2nd experience with it. In 1967 when I was badly burned and in a military hospital in Japan, I was one of the test subjects for what we at the time called "white lightning". It helped then too.
David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I used Aquaphor and pure aloe and cleared up with in 2 weeks after rads and chemo were completed. Dr also gave me Eucerin to use with them. Whatever is used, use it religiously.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2009 Posts: 440 | I used Aquaphor and then the doctors gave me some neck dressing that had the silver sulfadiazine embedded in it but I didn't like it so I pitched it after two goes at it. I think just making sure the area is lathered well does the trick.
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
| | | | | Joined: Jun 2010 Posts: 10 Member | | OP Member
Joined: Jun 2010 Posts: 10 | Thanks to all for your replies. We have been using the pure aloe and that seems to help. Tomorrow is last day of radiation. Hurray!.
Positive Spouse
Hubby had Stg IV SCC 3/19/10 rt tonsil, two lymphs, tumor HPV 16 pos, age56. smoker
6/1/10 teeth out
2x cispltn-1- carbopltn-- 35 rad ended 8/9/10
Port/PEG, lost 40 lbs,
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