| |
| | Joined: May 2010 Posts: 48 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: May 2010 Posts: 48 | Hey went for check up Monday and today! Saw ENT on Monday and Radiation Doc today. I was concerned about irritation on Right side where I got most of the radiation in mouth. I am 4 weeks post treatment. The ENT said it was just healing still from Radiation treatment; that everything was healing good. Radiation team said I had a tiny amount of soft tissue bone exposure (necrosis). That it wasn't a major concern but they wanted to keep an eye on it! I thought I was doing so well. I was even starting to eat pasta and yogurt! Has anyone ever heard of having this problem? I'm starting to freak out!!  Charles
Last edited by Irishgypsie; 07-28-2010 05:32 PM.
Charles
HPV +16 Right Tonsil SCC with 1 Right lymph node. Tonsillectomy and neck resection.
Got 33 radiation doses via tomo machine (58 gry to back of throat, 65 gry to right neck, and 56 gry to left neck) with 2 cisplatin and one carboplatin due to possible hearing loss.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Hi Charles. Glad to hear you are making good progress in eating. Keep up the good work!!!! After radiation, the necrosis is common. Sounds like you have a good team and they are on the ball. Try not to worry and keep pushing the food and water. It can take up to 2 years to heal from what you have been thru.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: May 2010 Posts: 48 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: May 2010 Posts: 48 | Hi Christine, Well I guess I maybe freaked a little too much and when straight to the worst scenario to focus on. But I guess because I had bad enough luck by getting cancer I couldn't help but focus on the worst; I when to some web-sites and they all pretty much said that some tissue necrosis is normal and that usually is heals well on its own. I'm just tired of it all. I want to heal and start living my life again. With a little more caution of course ! Thank you! Hope you are well! Charles
Charles
HPV +16 Right Tonsil SCC with 1 Right lymph node. Tonsillectomy and neck resection.
Got 33 radiation doses via tomo machine (58 gry to back of throat, 65 gry to right neck, and 56 gry to left neck) with 2 cisplatin and one carboplatin due to possible hearing loss.
| | |
| Forums23 Topics18,248 Posts197,137 Members13,321 | | Most Online1,788
Jan 23rd, 2025 | | |
|
| |
