| Joined: Sep 2009 Posts: 148 Likes: 1 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Sep 2009 Posts: 148 Likes: 1 | Hello Survivors! Just wondering...I am 2 years post TX and am just wondering how often will these CT scans will be ordered? I get one every 6 months. My next one is on 8/12/10.
I feel secure from the information that the CT gives, but cringe that I am still receiving so much radiation per CT.
Could cancer come back from receiving CT scans over time? On the last visit to my oncologist & mentioned this concern, she stated that the CT's give the best image needed to rule out any problems. How do I argue with that? !
BOT T3N2M0 No surgery, 38radiation treatments,4 chemo rounds, peg removed 11/08, still have a port. Treatments ended 6/20/08. So far, so Good ! "I know God won't give me anything I can't handle. I just wish He didn't trust me so much !"
*** Admin update --- Dianne has passed away on August 25, 2015 ***
| | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Feb 2007 Posts: 790 | I am 3.5 years out and they decided to stop scanning me. They will always scope me and do a chest xray every year. There is exposure to a little radiation but the 1st few years after treatment are the highest chance of reoccurance. Hopefully you won't be scanned for life. I know exactly how you feel-- it is good to know the info but they are not the most fun things to do.
Hang in there! Kate
Tongue Cancer T2 N0 M0 / Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007 Surviving!!!
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | I had 3 scans all within my first year due to lung spots and have none since. I am now on a every 6 month visit schedule and of course they do the scope thing but that's it.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2007 Posts: 666 | I had a 3 post treatment PET/CT scans and then it was stopped. Insurance was just one of the reason so we switched to an MRI (this year). Regarding radiation this is a concern and there are numbers floating around that correlate medically unnecessary CT scans (in ERs), done to avoid lawsuits and induced cancers. While these numbers are not zero they are very small and in comparison to the radiation which you already got it is a drop in the bucket. (This is my rationale). Still, perhaps you could explore if MRI's are an option for you.
M
Last edited by Markus; 07-20-2010 11:31 AM.
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
| | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | My oral surgeon never liked to do CTs unless he thought something was wrong. He relied on visual and scope.
My lung dr and pancreas dr, however, both run me through the CT once a year. Since I've now been diagnosed with early stage triple negative breast cancer that my breast surgeon thinks might be caused by skatter radiation from the H&N cancer, I'm wondering if all these xtra CT scans might have contributed to it also. I'm certain they didn't help.
CT scans do expose you to lots of radiation. I forget the numbers but they are available somewhere. Maybe Gary will pop in and post on this.
As for me, I'm going to try to avoid them from now on in if I can.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | Joined: Sep 2009 Posts: 148 Likes: 1 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Sep 2009 Posts: 148 Likes: 1 | Thanks everyone for your input & taking the time to post. From the minute we are told about our cancer..we have staff rallying around us, so much attention. Thats when we know we are really sick...or very liked! When treatments are over it is a little let down in an odd way! All that attention just comes to an end! So I guess the follow up is OK. It keeps us in the loop! As long as CT scan is what my Dr. wants for now, thats what I'll do! I will continue to put my trust in her hands! She's done me GOOD so far !!!
BOT T3N2M0 No surgery, 38radiation treatments,4 chemo rounds, peg removed 11/08, still have a port. Treatments ended 6/20/08. So far, so Good ! "I know God won't give me anything I can't handle. I just wish He didn't trust me so much !"
*** Admin update --- Dianne has passed away on August 25, 2015 ***
| | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jun 2009 Posts: 440 | I'm not sure what my drs plan on doing after this next scan. I've had one every 3 months since treatment ended, I would like for them to at least be every 6 months if not longer in between but at the same time, I trust their judgment and if it's what I need at the time then so be it.
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0 Elizabeth, 33, mother of 3 girls (4,7, &8yrs old) 3 rds of chemo(Carbo/Taxol) Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube. 30 rds of rads with weekly cisplatin SCANS ALL CLEAR! OCF Regional Coordinator of San Antonio Walk
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