| | Joined: Jul 2010 Posts: 60 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jul 2010 Posts: 60 | I can't believe the roller coaster I am riding. I am three weeks from diagnosis and one week before my radiation begins. I had my PET scan yesterday and am so afraid they will discover it is in my lymph nodes. I am afraid of a stage iv diagnosis.
Thankfully, I can read the posts of many stage iv survivors. I also can think of my husband, an 18 yr survivor of tongue cancer, and a 12 yr survivor of neck cancer.
I guess none of us know how much time we have, but damn, it is hard to let go of wanting to be in control.
Susan/59/nonsmoker /tonsil cancer spread to tongue,stage III diagnosed 6/10, HPV+ T3,N1 Finished 35 radiation and 7 cisplatin 9/7/10.
| | | | | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Stay strong Susan....will be thinking about you.
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
| | | | | Joined: Jul 2009 Posts: 1,409 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 Likes: 1 | I too will keep you in my thoughts, Susan. Keep us posted.
Courage.
D2
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Susan - That rollercoaster is the pits! The few days until you find out what's happening can seem like an eternity. Try to grab hold and hang on to the good stuff that has happened - like your husband's positive survival experience and so many others here who have been on that same rollercoaster and came out ok. Sending positive vibes your way. Let us know what happens.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | |
| Forums23 Topics18,306 Posts197,298 Members13,504 | | Most Online7,516
Mar 21st, 2026 | | |
|
