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#119319 07-12-2010 04:01 PM
Joined: May 2010
Posts: 135
penners Offline OP
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grin Am happy to report that Teresa's followup with her radiologist today went very well. He said her mouth looked great! Also told her that she was treated "very aggressively" and provided some comfort to ease her fears of a recurrence (but did mention the 2 year mark). He did say that they killed the saliva gland on the left side where her cancer was but hold out hope that the right gland will improve. She is still having alot of mucous and dry mouth... mucinex helps some and MD ok'ed her to continue with it. Her taste is beginning to return and she is eating pretty much whatever she wants. She had gained a pound since last visit (thank God she didn't lose weight during the process... she is a tiny little thing anyway). She enjoyed home grown tomatoes and cucumbers yesterday! Not yet ready for coffee as she "doesn't want to ruin" her enjoyment of it.

While she feels like her tongue is "huge" and speech is very slurred, to others it looks completely normal and she has only very slight slur of certain words. The neck stiffness is irritating to her and excercising it doesn't make much difference.

Overall, we are totally blessed that she had a wonderful team and came through all of this as well as anyone could have I think. Thank you all for your support, words of wisdom, and willingness to share your experience, strength and hope.

Love ya all!

Dodie


Aunt diag. 2/4/10 with SCC Stage I/II on left side of tongue. Surgery 2/19/10 part. gloss./neck diss. on left side/free flap from chest muscle. TI/II,NO,MO. Clear margins with perineural invasion. Started rads 4/8/10 - 35 treatments, finished 5/26/10.
penners #119325 07-12-2010 06:44 PM
Joined: Apr 2010
Posts: 201
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WooHoo Dodie and Teresa. That is great news! My sister is also the sameway with the neck being stiff and tight. She also speaks very well but thinks she doesn't and thinks her tongue is very swollen. Hopefully in time it is something both will get use to. So glad that you are done with treatment and are on your way to fully healing.


CG to Sister (42). Smoker quit @ diagnosis Dx 4/20/10 SCC T2N0M0, Rside of tongue Hemigloss R neck dis, all nodes removed 6/2/10, Trach and NG in, home 6/8/10,8/18/2010 start erbitux x6, 30 IMRT end 10/11/10 with only 3x erbitux due to reaction and one week off of rads
1/10/2011 Clear PET!!!
Susan3175 #119340 07-13-2010 06:27 AM
Joined: Jun 2010
Posts: 111
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thats so good dodie. very happy for you


my mom, age 59.

12/08 surgery & 33x rad
4/09 recurrence
5/09 surgery & 35x rad
12/09 recurrence
1/10 surgery. peg tube, trach, fibula free flap
6/10 recurrence. double chemo treatments.
8/10/10 finally at peace in heaven

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