| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Emily, Ive also been thinking about you and wondering how you were. I wrote on your FB wall. Thanks for the update on your mom. It must be very difficult for you not to be with her right now. She is in great hands so dont worry. Worrying will never change anything but make you upset, right now you do not need that kind of stress. Do you have any idea how long she will be in Texas? I wish you the best of luck with your daily challenges. Your first baby is such an exciting time. There is so much to do and plan. Do you have any friends who recently had a baby? They might give you some good advice. There are some excellent books that will give you week by week info and important tips. Especially important is taking the prenatal vitamins. Have you found a good doctor yet? Lots of people will tell you all about their horror stories from being in labor, dont listen!!!! I would tell people as soon as they started telling me their story to save it til after Id had my baby. Please check in with us and give updates on your mom and on you too ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jun 2010 Posts: 111 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Jun 2010 Posts: 111 | Hey Christine...Im not sure how long she will be there. I think they wanted to do a couple rounds of chemo there to see how its working and maybe send her back home where she can complete it (5 months long). My hope though is they do a couple rounds, its working, and they try her onthe drug therapy. Its so hard to understand whats going on, like I said. I sent her another email today but havent heard back. I just texted her and said CHECK YOUR EMAIL WOMAN. So hopefully she will today - I know she met with the Dr yesterday so she should have some sort of update. I actually have a friend who is pregnant right now. She used to be my employer - I was her nanny before I started teaching. Now we're really good friends and I still visit with her little girl, Im actually watching her tomorrow! The womans name is Christiane Im about 10 weeks behind her. She is really smart and has always educated me on how important it is to stay away from toxins in beauty products and eating organic while pregnant. Shes given me a lot of great advice. Im on a whole food prenatal and a prenatal dha. Anyway hopeuflly Ill hear from my mom today and Ill let you guys know what she says! Thank you for always thinking of me
my mom, age 59.
12/08 surgery & 33x rad 4/09 recurrence 5/09 surgery & 35x rad 12/09 recurrence 1/10 surgery. peg tube, trach, fibula free flap 6/10 recurrence. double chemo treatments. 8/10/10 finally at peace in heaven | | | | Joined: Jun 2010 Posts: 111 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Jun 2010 Posts: 111 | I finally talked to my mom today. She sleeps SO much now. My stepdad says the chemo has reduced the size of her tumor..its easy to tell because it causes her cheek to protrude. He says its also decreased her pain a lot. What a relief! I was on pins and needles to call..I always assume I dont hear from them b/c its bad news. She hasnt called me because shes just always sleeping. Again, better than being sick, I suppose.
If this can just continue to work and she can start another trial, what a miracle that would be.
my mom, age 59.
12/08 surgery & 33x rad 4/09 recurrence 5/09 surgery & 35x rad 12/09 recurrence 1/10 surgery. peg tube, trach, fibula free flap 6/10 recurrence. double chemo treatments. 8/10/10 finally at peace in heaven | | | | Joined: May 2010 Posts: 135 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: May 2010 Posts: 135 | Oh Emily, what wonderful news! I'm so glad the chemo is reducing the tumor and decreasing her pain. Hopefully this will continue and she can come home and/or take the new medication. Sure do appreciate the update and will keep you both in thoughts and prayers.
Dodie
Aunt diag. 2/4/10 with SCC Stage I/II on left side of tongue. Surgery 2/19/10 part. gloss./neck diss. on left side/free flap from chest muscle. TI/II,NO,MO. Clear margins with perineural invasion. Started rads 4/8/10 - 35 treatments, finished 5/26/10.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Emily, thanks for giving us updates. A big YEA!!!!! Im so happy that the chemo is working and the tumor is shrinking. Glad your mom is more comfortable. Now you can relax knowing your mom is improving I have an idea for you. Ask your mom to give permission for her doctors and nurses to talk directly with you. She will need to sign a paper for HIPPA privacy rules. This way you can call the doctors office and find out info without bothering your mom or not feeling like you have the whole story from your step dad. Im so happy you have a close friend who is also pregnant. That will bond you two even more. Nice to hear some good news about both ou and your mom ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Feb 2007 Posts: 790 | Great news that the chemo is working on her tumor! Stay calm and as relaxed as you can. Its important for the baby that you take care of yourself and not be too anxious and nervous.
XOXOXOXOX Kate
Tongue Cancer T2 N0 M0 / Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007 Surviving!!!
| | | | Joined: May 2007 Posts: 132 "OCF Down Under" Senior Member (100+ posts) | "OCF Down Under" Senior Member (100+ posts) Joined: May 2007 Posts: 132 | Hi Emily,
I'm so glad that your Mom is doing well. Sleep is also a great healer so be happy that she is getting plenty of it! I still sleep for up to 12 hours even 7 months post treatment. I hope that she is back home soon and that the two of you can shop up a storm in a month or two!!
Sue
55 y/o SCC LL Tongue 3/27/07 Part. mandibulectomy 9/2/07 Left ND 5/12/08 RT/Chemo Rec LL Tongue 07/09 Part gloss 8/5 & 8/25 Surg 10/28/09 re mets to R neck & L jaw RT & Chemo finished 12/22/09 PEG fitted 05/06/10 L buccal SCC 10/10 freeflap (forearm)surgery 2/28/11 L buccal and gingiva
| | | | Joined: Jun 2010 Posts: 111 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Jun 2010 Posts: 111 | hi ladies! GREAT news today. like, really unexpected. mom went in for standard lab work she must do prior to the next treatment. after the blood work was done they concluded the chemo is definitely working. she will do another round next wednesday and then they are going to send her home to finish treatments!! shell have four more done here and then they want her to come back - possibly to do the drug therapy.
im just so excited and happy and somewhat relieved. i havent felt genuinely happy in months. im cautious to get so happy but what the hell. shes so happy she gets to come home and so am i cause i get to go home! taking care of 5 dogs, 1 bird, 1 fish tank, 1 koi pond and clogged up filter, 2 yards to cut, 2 houses to clean is about to kill me! i also started back work today (was off for summer vacation from teaching) so have been super busy preparing for our kids that come in next week.
hope all is well with everyone else. you guys are the best
my mom, age 59.
12/08 surgery & 33x rad 4/09 recurrence 5/09 surgery & 35x rad 12/09 recurrence 1/10 surgery. peg tube, trach, fibula free flap 6/10 recurrence. double chemo treatments. 8/10/10 finally at peace in heaven | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Emily, Im so happy to hear your mom is doing so well. Thats the best news Ive heard all day!!!! Yipppeee!!!! You sure could use a break. So glad to hear your mom will be coming home. Now you can start to return to your normal life. Hope she is feeling good. Chemo can really kick your butt. Miracles do happen ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jun 2009 Posts: 440 |
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0 Elizabeth, 33, mother of 3 girls (4,7, &8yrs old) 3 rds of chemo(Carbo/Taxol) Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube. 30 rds of rads with weekly cisplatin SCANS ALL CLEAR! OCF Regional Coordinator of San Antonio Walk
| | |
Forums23 Topics18,199 Posts197,006 Members13,185 | Most Online614 Jul 29th, 2024 | | | |