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| | Joined: May 2010 Posts: 135 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: May 2010 Posts: 135 | I've been a bit hesitant to make a general post on this but with Brian's OK and the most recent raves from my aunt, I thought I'd share with you our "treatment" for tongue burning and soreness of the mouth..... Slippery Elm Bark lozenges. Was aware of it since I used it myself for sore throats. When Teresa began experiencing the post radiation burning, we gave it a try and it immediately relieved the burning for her. Teresa is now on her second box and says it has helped her more than anything else with the burning and the sore areas.
It is about the size of a sweet tart and it will slowly dissove in the mouth. Directions call for one ever 4 hours.
Can be found at any health food store. Hope it will be as beneficial for some of you!
Dodie
Last edited by penners; 06-28-2010 01:18 PM.
Aunt diag. 2/4/10 with SCC Stage I/II on left side of tongue. Surgery 2/19/10 part. gloss./neck diss. on left side/free flap from chest muscle. TI/II,NO,MO. Clear margins with perineural invasion. Started rads 4/8/10 - 35 treatments, finished 5/26/10.
| | | | | Joined: Feb 2010 Posts: 55 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Feb 2010 Posts: 55 | What are the side effects of Slippery Elm Bark?
Brother Dx oral cancer March 23. Invasive Squamous Cell Carcinoma: Mod Dif Anterior Floor of Mouth, Peridental Soft Tissue, Right Bony Margin. Lymph Nodes 0/56 Stage II,pT2,pN0 2.8 cm
I was Dx b/cancer 9/2007. IDC Stage2 Grade2 2.4 cm 0/8 Nodes ER+ PR+ Her-2 Rad 33 no chemo.
| | | | | Joined: May 2010 Posts: 135 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: May 2010 Posts: 135 | the only thing I found is that that it should be used 1 hour before meds as it may interfere with absorbtion of certain meds. No other side effects were listed.
Aunt diag. 2/4/10 with SCC Stage I/II on left side of tongue. Surgery 2/19/10 part. gloss./neck diss. on left side/free flap from chest muscle. TI/II,NO,MO. Clear margins with perineural invasion. Started rads 4/8/10 - 35 treatments, finished 5/26/10.
| | | | | Joined: Mar 2011 Posts: 131 Likes: 4 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2011 Posts: 131 Likes: 4 | I have had good luck with the slippery Elm bark. Not so much in the mouth but more so in the back of my throat.
Not wanting to change the subject but....with the use of Manuka Honey I have not had a sinlge mouth sore after 5 weeks of rads (knock on wood). Granted, most of my rads are aimed towards the back of my throat where my tonsils used to be but there is still some scatter and (although I can't be sure) I do think it has helped me a lot.
Will Zinn
Lump in left side neck discovered Sept 2009
Misdiagnosed & FNA inconclusive
Large lymph node removed Nov. 2010 SCC and HPV16 pos
PET pointed tonsilectomy Feb. 2011
1ml tumor left side tonsil
Rads scheduled March 14th 2011. 2X36 GY's (72)
CarboTaxol once a week X 4 or 5 starting 4/5/11
No PEG
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 4 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 4 | I second that motion - I started getting sores a week ago - the end of week three. Picked up some honey... Used it for two days... It did burn a bit where the sores were, but after 3 days I'm clear - no sores a and still eating by mouth.. Week 5 has begun. 
Last edited by Cheryld; 04-18-2011 11:45 AM.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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