| | Joined: Feb 2010 Posts: 235 Gold Member (200+ posts) |  Gold Member (200+ posts)
Joined: Feb 2010 Posts: 235 | Sandy, I have a feeling over and over you will be happy that you both decided to have the treatment at such a good place.
What happened over the course of my husband's treatment(and I know this wasn't unique)were there things that happened we didn't expect(like him needing to go to the Er for a fever)and questions about what was "normal"(if anything is normal in this situation) and it helped so much to have a bright,compassionate team of doctors helping to guide us.
David, Wow. Really.
CG to Spouse BOT, Chemo and radiation started on March 29,2010
Ended on May 14,2010. LET THE HEALING BEGIN!!!
| | | | | Joined: May 2010 Posts: 18 Member | | OP Member
Joined: May 2010 Posts: 18 | David 2,
I know none of us can say enough about DavidCPA. He moved it through for me and I have appointment for mask (and whatever else tomorrow) when Dr Trotti is there. He will be gone on Thursday, but that is the day for my Pet scan (is it PT or Pet?). Anyway, the ball is rolling.
Take care all,
Sandy | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Sandy's tumor is in a unique location in her vocal cords area that Dr T was concerned not about killing it but the lifetime adverse side effects including loosing it all together. He is one of the, if not the only RO in the State of Florida, that has the equipment to do a PET with the mask on to get the best possible mapping prior to beginning radiation. He is confident that with this added diagnostic tool he can really mitigate those side effects. That's why I was pushing Sandy to give up those 7 weeks in exchange for a better, perhaps way better, chance that she can come through with minimal side effects.
I also now get that new car from Moffitt... Just kidding Sandy!
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 618 | David.
I had IGRT, which as you know is Image Guided Radiation Therapy. The image in this case is an X-ray that is taken as each session starts to assure absolute accuracy.
Is Moffitt using a PET scan as the IG part of their procedure, or do they just have a PET that can see through the mask as a separate function and then follow on with the multiple IGRT sessions?
Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR
| | | | | Joined: Apr 2009 Posts: 329 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Apr 2009 Posts: 329 | Davidcpa, I think it's wonderful what you have done for Sandy and her family. You're one in a million...
Sandy you're in my thoughts and prayers your in good hands at Moffitt.
SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2.
Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.
CT Scan 9/11 clean, CT Scan 9/12 clean
Moffitt Cancer Center in Tampa, FL. A+.
My hometown Lockport, NY.
| | | | | Joined: May 2010 Posts: 18 Member | | OP Member
Joined: May 2010 Posts: 18 | I had the mask done today. By, is my face cute in that mask Just kidding. (Not really) I'm ready to do. Pet Scan tomorrow. Total treatment start on June 21.
Take care all,
Sandy | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Sandy had her PET with mask on yesterday at Moffitt. I guess by now I'm not her favorite person anymore! lol She starts concurrent chemo (3 bags of Cis) and radiation (7 weeks) June 21.
Not bad, look what this site did for her. Her first post was May 21 and she was being seen by an ENT who was planning only radiation and now only 30 days later she will be treated at the best CCC in the State of Florida by a multidisciplinary team. I wonder how many other cancer help sites can make that claim?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,406 | David - it's all you, man!
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
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