#11723 08-29-2007 12:49 PM | Joined: Aug 2007 Posts: 580 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Aug 2007 Posts: 580 | Minnie,
I'm saying all my best Irish prayers for you as we speak. I'm sorry to hear about your recent diagnosis.
If I can be of any assistance just ask or e-mail me.
I'll be checking on you here frequently.
Stay strong!!
Mike
Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend.
Live, Laugh, Love & Learn.
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#11724 08-29-2007 01:28 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Minnie,
I am so sorry to hear your news, but I have no doubt that you will win this battle, too. I think that you are wise to get that second opinion. Even get a third. You know so much more than before and that knowledge will help you a great deal.
It is so typical of you to feel sorry for your husband. You have a great family and their support and love and the love of everyone on this board, will go a long way as you fight and beat this horrible disease in round two.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#11725 08-29-2007 02:10 PM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | My Dear Minnie, I haven't had a computer for weeks, just read about all of this happening in your life....you know you have my prayers and we are not that far from one another,distance wise. I can help, if needed......God Bless you and your family, Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#11726 08-29-2007 02:38 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 |
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
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#11727 08-29-2007 02:54 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Today was a little tougher than yesterday, it's really sinking in I think. My daughter talked with Brian at length and of course our leader made us all feel much better. We have decided to get second and third opinions from John Hopkins and Dana Farber. Hopkins is about 4 hours from us and I have a brother that lives in Boston, so both places are good locations. I'm also considering Sloan-Kettering. I just know that I want treatment started NOW, I want this out of my body and I want to get on my road to recovery. I have so many things planned for this fall and winter, I'll be damned if this cancer will get in my way  ! To all of you that have become part of my heart, who have stood by me each time I've been scared or anxious..........pray for me but especially pray for my family. To put it bluntly, I have the easy job in all of this, the most I will have to suffer is dying. My husband and children will have to carry on without me and we are one of those families where mom is the foundation. I get sick to my stomach when I think of my 16 year old crying alone because her mother has died. Morbid I know, but these thoughts need to be dealt with. I will keep everyone posted, I go for the PET scan tomorrow, they changed it from Friday, and we're praying for it to be clean. Love Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#11728 08-29-2007 03:28 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | There are a bunch of us praying with you
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
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#11729 08-29-2007 05:24 PM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Minnie,
I have placed you and your family on our prayer tree. I know of at least 30 people in my immediate area who are going to start praying for you as soon as they receive my msgs and then will call their "limbs of the tree"....and so forth.
God Bless and try to get some rest. Try to think positively, it will bring you more peace.
Love,
Donna
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#11730 08-29-2007 05:25 PM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Minnie, can you feel us all joined in prayer for you?? I hope so, because there is power in the prayers of others for someone in need. Keep talking out loud. That is going to be good for you. And know that we will all be waiting for the report of your scan. Get those other opinions, and then hit it with all you've got!!
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#11731 08-29-2007 05:55 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | I try, out of respect for others, to keep my religious tones out of my postings.............but not this time! I am deeply religious, my children attend a private Christian school. I have put my problems in Gods hands but he also understands that I will be using every single bit of medical warfare I can muster up. I need to stay here for the time being.
I DO feel the prayers, the good vibes, the positive aura. My mom coming today did me good, everyone wants mom when they're sick.
I'm eating nonstop although it's tough because my stomach has shrunk so much. But my older daughters have ordered me to gain 15 pounds in 10 days and they are like my wardens! I watched them all today, placing themselves in the needed role, and saw that my house can run just fine without me if it ever comes to that. That right there took away a good portion of my stress.
Love to all of you!
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#11732 08-30-2007 01:09 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Minnie, you know I will put you and your family on my Church's prayer list, and there are some major prayer warriors in my church.....I am praying the scan comes out clean.....If you end up at Hopkins and need me, I am a stones throw away......Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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