| | Joined: May 2010 Posts: 2 Member | OP  Member
Joined: May 2010 Posts: 2 | Hello all. I'm new here and type like I have five thumbs on each hand so my replies may be long in coming. Had a recurrence of HNC with a partial glossectomy in April. My first go round was June 1992 Stage IV w/ RND at 25 y.o. | | | | | Joined: Mar 2002 Posts: 4,918 Likes: 67 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 67 | Welcome to the "famiily."
Unlike most that come here, you probably already have a pretty good "lay of the land" of what is ahead of you... unfortunately again. Please tell us the whole thing when you get your thumbs working, and allow us to support you with our knowledge, contacts, experiences, and empathy. This time you will not be alone one day of the journey if we are allowed to walk with you.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Welcome hubbedbee,
Sorry to see you are going though this again after such a long time. Type away with those 5 thumbs as there is no test here for accuracy. You will get so much support and information here As Brian says tell us more about yourself and ask away with any questions. Someone here will have the answer.
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Jul 2009 Posts: 1,409 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 Likes: 1 | I'll add my welcome, HB. You're most certainly in the right place here at OCF. These folks have been a wonderful support to me and I'm sure you'll feel the same way immediately. Keep us posted, please.
David 2
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
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