| | Joined: Nov 2009 Posts: 212 Gold Member (200+ posts) | OP  Gold Member (200+ posts)
Joined: Nov 2009 Posts: 212 | Hi Friends,
I was thinking about this last night, wonder if any of you have had a similiar experience.
I was dx'ed about one year ago, treatment in Aug/Sept and recovering since then. I am doing well, back to riding,swiming and running. Eating well thoughmy taste buds are wacky and still have some saliva problems. But for you newer folks, recovery takes time but it is steady and you will get better! I am even gaing some weight, just a few pounds. So here is the weird stuff
Before cancer I had colitus, an auto imune problem. I would get 3 flares a year. I also had exercise induced asthma, another immune problem. Both were inflaminatory problems. I would take prednizone like candy at times!
Well now, I do not have the asthma problem and have not had a colitis flare in a year. I wonder if the chemo and the radiation slapped the @#$% out of my immune system and got it back on track? weird ???
Hope you are all doing well today!
Steve
70 male, athlete...again
SSC of undetermined orgin , early july 09
40 tx radiation, 8 chemo cisplatin and ebuterx
finished TX in mid Sept 09
Clear at the 6 year mark!
Back to swimming, biking and running! just a tad slower
never regained my weight, even when I eat lots and lots, just a skinny guy now
Just way glad to be seeing the green side up!
| | | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 701 Likes: 1 | Steve,
That is weird but maybe all the treatment you received did have an effect. Like pressing the reset button. Good for you! I am happy for you that you don't have to deal with colitis and asthma anymore. Let's keep our fingers crossed that it stays that way.
Anita
Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
| | | | | Joined: Feb 2010 Posts: 235 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Feb 2010 Posts: 235 | Steve, I have worked with patients who have had cancer and had long term problems clear up after treatment.
Not sure why but I've heard this before.
With all the wacky side effects you do get from treatment,I think it's great to get a bonus clean-up!!!
CG to Spouse BOT, Chemo and radiation started on March 29,2010
Ended on May 14,2010. LET THE HEALING BEGIN!!!
| | | | | Joined: Sep 2009 Posts: 148 Likes: 1 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Sep 2009 Posts: 148 Likes: 1 | Hi Steve, I also have had a few bonus gifts from former treatment! Weight loss..love it! Every year (like clock-work) I would get the flu. I don't get any flu shots, but for 2 years so far...no flu! No headaches either. I'm so glad for all this, because I am still so scared to swallow any pills! Rejoice in feeling better & not having to deal with former issues!
BOT T3N2M0 No surgery, 38radiation treatments,4 chemo rounds, peg removed 11/08, still have a port. Treatments ended 6/20/08. So far, so Good ! "I know God won't give me anything I can't handle. I just wish He didn't trust me so much !"
*** Admin update --- Dianne has passed away on August 25, 2015 ***
| | | | | Joined: Oct 2007 Posts: 83 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Oct 2007 Posts: 83 | Wish it would've had that effect on my psoriasis, another auto immune. But it is back with a vengance...before C I was on injectables..but now the Dr's don't want to use them...they are all T-Cell inhibitors, which makes the cancer cells happy.
So I'm just flaky and use lots of topical stuff and thank the lord I'm still cancer free.
Stage 4b BOT and node on right of throat. did 38 trips of TOMO PEG tube,Cysplatin,Taxotere & 5fu 1st 4th and 7th week, changed to Erbitux for the last 4 weeks. 1st PETS since end of TX..CLEAR 6mos out and 2 nodes are hot. Bilateral neck dissection on 10/31/08. Clear Scan 3/31/09 & 8/02/2010
| | | | | Joined: May 2010 Posts: 61 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: May 2010 Posts: 61 | My slightly high blood pressure vanished during treatment and has not come back so far.
Survivor. 55yr male. Dx 07/09 SqCCa Stage IV, Rt Tonsil, Lt&Rt Lymph Nodes. Aborted tonsilectomy 07/09. Chemo port 07/09. PEG 09/09. Chemo - 3xCisplatin 6xErbitux. RTx35. Tx ended 11/09. CAT scan (clean) 01/10. PET scan (clean) 02/10. Port & PEG removed 04/10.
| | | | | Joined: Mar 2009 Posts: 147 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2009 Posts: 147 | My migraines disappeared and have not come back yet!
DX 2/10/09; Stage 1 SCC side of tongue; Partial Gloss; PEG in 3/3/09; 3 Cisplatin; 35 IMRT; PEG out 7/17/09; Eating via mouth and walking 3 miles/day 4 wks after treatment end. 50 pound weight loss; Clear PET 09/09 and 09/10
| | | | | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 716 | I talk like Sylvester the cat and my wavy hair is now straight. 
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
| | | | | Joined: Nov 2009 Posts: 212 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Nov 2009 Posts: 212 | [quote=Ray1971]I talk like Sylvester the cat and my wavy hair is now straight. [/quote] Hey Ray, you gave me a great morning chuckle on that one!!!!! Steve
70 male, athlete...again
SSC of undetermined orgin , early july 09
40 tx radiation, 8 chemo cisplatin and ebuterx
finished TX in mid Sept 09
Clear at the 6 year mark!
Back to swimming, biking and running! just a tad slower
never regained my weight, even when I eat lots and lots, just a skinny guy now
Just way glad to be seeing the green side up!
| | | | | Joined: Aug 2009 Posts: 32 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Aug 2009 Posts: 32 | My allergies are much less severe than they used to be. The past two springs have been a breeze.
Dx 8.14.08. 42 at diagnosis. Stage IV Tonsil. Tonsillectomy 8.25.08. Induction chemo (9.29.08) (taxol and carboplatin) 5 weekly treatments. 35 rad and 6 concurrent chemos. Finished 12.22.08. No peg, no port. Neck dissection Feb. 09
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