| | Joined: Aug 2006 Posts: 294 Gold Member (200+ posts) | OP  Gold Member (200+ posts)
Joined: Aug 2006 Posts: 294 | I would like to know if anyone has used a dry mouth spray product by name of Spry, offered by a company by name of Xlear? It seems to be considerably more expensive than the Biotene or Stoppers4 products but contains Xylitol which might explain. Just curious if it might be worth the extra cost?
Thanks,
Bill Dozier
Dx 4/27/06, SCC, BOT, Stage III/IV, Tx 5/25/06 through 7/12/06 - 33 IMRT and 4 chemo, radical right side neck dissection 9/20/06.
| | | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,406 | Bill, I can't comment on Spry having never heard of it. I did try the Biotene gel and hated it. Something about the combination of taste and consistency was disturbing. Mainly I just wanted to congratulate you on 4 years out!
D2
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Bill - xylitol is a way cheap product. There are a ton of web sites that sell it by the pound bag for home use instead of sugar for about 7-9 dollars. The company that you have mentioned is the largest seller of it. While I know people who get it at the health food store and use it, I do not really know how credible all the claims for it are.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Aug 2006 Posts: 294 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Aug 2006 Posts: 294 | Thanks for the input so far. I thought maybe there was something special about Spry by Xlear with it being so expensive. I had never heard of it and just happened to see it on the web. After almost 4 years post TX I still have severe dryness but mostly while in bed overnight. A room vaporizer has not helped nor have any of the other oral products except for a few minutes at a time. I seem to have no real problems during the day but it is odd how I go dry if I get under stress or anxious about something.
I might give one bottle of the Spry a try just to see although $16 for a 4.5 oz. bottle seems rough.
Thanks again,
Bill Dozier
Dx 4/27/06, SCC, BOT, Stage III/IV, Tx 5/25/06 through 7/12/06 - 33 IMRT and 4 chemo, radical right side neck dissection 9/20/06.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I think if companys can get enough people buying it's products, a price raise happens to make more of the folding type of money. Just like most new products. Convince a few then put it to them.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Your post almost sounds like an advertisement.
I'm curious. When I went to the site called drymouthpump it says it's not scheduled to come out until July 2010, so where did you get yours?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: May 2010 Posts: 11 Member | | Member
Joined: May 2010 Posts: 11 | David, I got the same impression. Went to the site and it was as you said.
Jack
Jack Werder
69 yrs young..
Quit smoking after diag.
left tonsil squamous cell carcinoma, stage II
diag. 9/2009 rad 10/1/09-11/23/09
cancer free so far. Still on the right side of the grass!
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I gave that poster 24 hours to respond and since he didn't I deleted him and his post. BTW his home town is the same as the company's. Coincidence...I think not.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | LOL Another dipstick bites the dust.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Dec 2010 Posts: 6 Member | | Member
Joined: Dec 2010 Posts: 6 | can you help?my mouth is constantly dry, I hardly get any sleep as i am rinseing my mouth most of the time.I can not swallow anything yet (4mths post treatment) | | |
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