| | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | OP  Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 396 | Andy feeding tube was taken out today. He has only gained 6 lbs back but has been ONLY eating orally for over a month. I am so amazed at his progress so far. His strength, dry mouth, and taste are still making slow progress but overall he is doing so much better than we expected!! | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Teresa, thats excellent news  Andy has made a remarkable recovery. He has worked very hard and done very well if he is able to be PEG free already. Gaining 6 pounds is a huge thing too!!!! Even maintaining your weight is a good thing. Its really difficult to gain weight for most OC patients right out of tx. I still struggle to keep a steady weight. Andy is lucky to have such a great caregiver
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | Teresa, that is great news. i just spoke with my GI Dr. today about getting my tube out as well. I have been eating by mouth now for over a week and not used the tube. I have to wait to see what the dentist says tomorrow as I have pain on a few of my teeth when flossing. Like a nerve is exposed or something.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Feb 2010 Posts: 235 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Feb 2010 Posts: 235 | Hi Theresa, it's been really hard for me to get on here lately(just keeping up with e-mails is daunting some days) but I do wonder how folks are. Last time I was on Andy was just finishing up his last five so I was so pleasantly surprised to read this.
How are YOU holding up???
CG to Spouse BOT, Chemo and radiation started on March 29,2010
Ended on May 14,2010. LET THE HEALING BEGIN!!!
| | | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 396 | I'm doing good. Exhausted but good. I too took a little break from this but realize that it was the OCF that helped me keep my sanity thru it alll.
Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
| | | | | Joined: Feb 2010 Posts: 235 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Feb 2010 Posts: 235 | Glad to hear you and Andy are doing well. Loved the post about him being in remission. Beautiful words,indeed.
I'm amazed at how much info I picked up from being on this website. Everything from what to expect, to what questions to ask, to what helps with certain kinds of pain.
Hard to imagine what it would have been like going through this with no prior knowledge of what might be coming our way.
CG to Spouse BOT, Chemo and radiation started on March 29,2010
Ended on May 14,2010. LET THE HEALING BEGIN!!!
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