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EzJim #114239 03-17-2010 11:57 PM
Joined: Feb 2007
Posts: 1,940
"OCF across the pond"
Patient Advocate (1000+ posts)
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"OCF across the pond"
Patient Advocate (1000+ posts)

Joined: Feb 2007
Posts: 1,940
Amen to that


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
Cookey #114310 03-19-2010 05:13 PM
Joined: Nov 2005
Posts: 1,128
Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Nov 2005
Posts: 1,128
I dimly recall someone on this group, from Canada I believe, saying she was having recordings made of her voice in anticipation of losing her ability to speak. Might have been several years ago.

I'm in the process of getting a DynaVoxTech Xpress talking box. The speech therapist at UW Med Center had a number of different models for demo and I was most impressed with the Xpress in terms of physical size (Too big and I'll never have it when I need it; I have trouble remembering to keep a notebook handy) and the software. It is highly customizable to the user's personal needs and whims. It's also apparently going to cost me some money; Medicare pays 80% and then my back-up insco will apply the remainder to deductible and out-of-pocket.

http://www.dynavoxtech.com/products/xpress/

My daughter was in favor of just getting an iPad and using existing apps, which would be much less expensive, but the Xpress will do so much more.

Text to Speech Demo

I'm going to have to settle for one of the off-the-shelf voices because I don't have any recordings except perhaps the voice mail greeting for my cell phone <g>.


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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