| | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 8 | Ive had this type of operation about 6 months ago. Of course everyone is different, so dont worry about being too much like me. For me it was a rough road in alot of ways. Some other ways it wasnt too bad cuz they kept me asleep for about 3 weeks. Here are a couple links to read which will answer alot of your questions. My son, TravisB reported my progress and the other one is a blog about my experience. http://oralcancersupport.org/forums/ubbthreads.php?ubb=showflat&Number=102247#Post102247http://oralcancersupport.org/forums/ubbthreads.php?ubb=showflat&Number=102049#Post102049Hope this helps. Best of luck!!!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Sep 2007 Posts: 60 Likes: 2 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Sep 2007 Posts: 60 Likes: 2 | I want to say thank to everyone for the support. It help me some to know what I will be going through. I just wish I could get my nerves to calm down some. It getting close to the date and already fighting with UNUM (they hadndle the short term pay). But I will will win out with them.
Again Thank you everyone
Round 1 5/2007 - 35 Rad treatments and 6 chemo of cisplatin
TPN feeding for 5 months during treatment and after.
Tumor was on the right side of the tongue.
Round 2. Tumor on the lower back right jaw area. Surgery on 3/12/2010 to remove the tumor, rebuild the jaw and some work on the back tongue.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I would rather not be told what their plans are. Let them do it and tell me what they did after I regain conciousness. I tell my Drs to just do what they have to and it seems they like that attitude. Then I want up and to be walking the halls. It hurts some but it works for me.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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