| | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Sloan is certainly one of the best cancer hospitals in the country. The people were nice except for the doctor I saw. He was nice enough but talked to me like my situation was small potatoes and he didn't understand why I was worried. I guess when you deal with it everyday some of the docs get that way. Good luck with your apppointment Susan.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Sep 2008 Posts: 711 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2008 Posts: 711 | My primary was a very small tumor on my tonsil which was completely unnoticed until it showed up in the lymph nodes in my neck. I would guess that if it hasn't spread to the lymph nodes, it would probably still be an early stage if it is cancer. Meanwhile, it's not cancer until a biopsy says it is.
David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
| | | | | Joined: Feb 2010 Posts: 16 Member | | OP Member
Joined: Feb 2010 Posts: 16 | Had the CT this morning. Now I wait for the report. I also went to the dentist and he did a thorough exam of my tongue and floor of mouth and he stated he saw and felt nothing. I was pretty firm with him in that I told him I have been going through "something" with the ENT for over a year so if he sees or feels soemthing I want to know and I dont want a runaround or sugarcoating of it. I was pretty specific and asked him point blank if he felt or saw anything that could even remotely be suspicous and he again said no. If there were anything I would have demanded a biopsy. He smoothed / filed down a few lower teeth and did a Panorex of my entire jaw all at once. I should be in to see the ENT for the CT results either Weds or Thurs. The Pano the dentist took a small bone spur type of thing in my left jaw up towards the TMJ joint.,...again I asked if it looks like cancer and he said no and that I could come back on Weds. to see the oral surgeon who comes in once a week. He felt it is somethig I was born with / have had for years. I am not ashamed to say that at this point I am scared shitless. I have had a stomach ache for 4 days leading up to this scan and now having to go back to the oral surgeon just ads to it all. I want to vomit.
Michele
Long Island
Still Testing
| | | | | Joined: Feb 2010 Posts: 16 Member | | OP Member
Joined: Feb 2010 Posts: 16 | Did you see Dr. Shah? I htink from Head and Neck Surgery? Ive been reading about him on the Sloan site and honestly his picture looks like he is not the greatest with bedside manner, LOL. I have a thing for needing to like someones face. Wierd I know.
Michele
Long Island
Still Testing
| | | | | Joined: Sep 2008 Posts: 711 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2008 Posts: 711 | Sounding good, Michele. I so hope it t is a false alarm. Please let us know when you find out.
David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | I did see Dr. Shah and his bedside manner was ok. It wasn't awesome and seemed to think my case was a waste of his time. But, he is one of the best surgeons at one of the best hospitals so I was just happy to get his opinion.
Try to relax....I know it's hard. Nothing has been determined yet and you are doing everything you can. Just take it one day at a time....
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Feb 2010 Posts: 235 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Feb 2010 Posts: 235 | Michele, as I mentioned earlier Shah was one of two doctors we were recommended to also. The guy who recommended him spoke very highly of him. For now, we decided on the other guy (Boyle) but not because we heard anything bad about Shah.
Hopefully, you won't need it but we go next week so I can let you know how it goes.
Suzanne, can help much more with her overall experience with the hospital since we haven't been but so far the folks we have dealt with have been quite helpful.
Last edited by SusanW; 02-15-2010 09:14 PM.
CG to Spouse BOT, Chemo and radiation started on March 29,2010
Ended on May 14,2010. LET THE HEALING BEGIN!!!
| | | | | Joined: Feb 2010 Posts: 16 Member | | OP Member
Joined: Feb 2010 Posts: 16 | Ok....here we go. Went to get the CAT Scan w & w/o contrast results. The report reads as follows:
Pre vertabral & para pharyngeal soft tissues are normal. The epiglottis, aryepiglottis folds, pyriform sinuses, true and false cords are unremarkable. No evidence of any mass. Parotid and submandibular salivary glands are symetrical without evidence of mass. Vascular structures are unremarkable. No evidence of lymphadenopathy. Thyroid is not enlarged and unremarkable. Impression: Normal CT with and without contrast.
About 2 hours after picking the disk and report up at the Imaging center the ENT's office called to tell me / confirm that everything is normal.
Also had 2nd visit with the oral surgeon this morning. He can not see or feel anything abnormal and asked to see the CT results once I had them to confirm that there is nothing there.
Ive also had 4 or 5 direct and indirect laryngoscopy procedures, nasal endoscopys, FEES test, an upper GI / endoscopy w/ biopsy and tons of exams by GP's / ENT / Gastro / General Dentist & Oral Surgeon.
Im relieved. Could this all be from nerves/ stress or glossopharyngeal neuralgia? Next step: neurologist
Michele
Long Island
Still Testing
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | That's great news. Be happy.
No one here is going to be able to tell you what is going on and it's good that you are seeking further medical opinions.
Good luck and keep us posted.
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | That is wondeful news Michele. See, sometime it's good to be unremarkable!!
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
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