| Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Nov 2007 Posts: 681 | Wow - sorry to get everyone riled up. I take no offense at anything which has been said in reaction to my posts. Thanks to my defenders. I did not make myself very clear.
In my first post I was upset that the person seemed to be equating my surviving 3 cancers(thank G-d it should be permanent) with being something I have done.
In my second post I meant the word victim in the absolute sense of one who is adversly affected by something. This is neither positive nor negative(remember those old math classes?). A victim is not defined by the reaction or outcome but by the event.
If a piano falls on your head you are the victim of someone's carelessness, an occurance above, someone intentionally dropping it on you, maybe not looking where you were going and tripping over your own feet, your own stupidity for standing under the thing as it is being lowered or maybe you are Joe Blflspk (any Dick tracey fans: is that the correct spelling?).
Last edited by Malka; 02-16-2010 07:58 PM. Reason: spelling error word did not make sense
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013. Support OCF
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Malka
While I am still waiting for my wristwatch radio, I think you meant the Little Abner character, [quote]Joe Btfsplk: World's most loving friend and worst jinx who always travels with a dark cloud over his head.[/quote] Charm
65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Nov 2007 Posts: 681 | Charm, You're right. I didn't have chemo so I can't blame that mixup on chemo brain, I'll just have to admit to old fogey foggy brain. You young kids will just have to google those old comic strips to see what you missed. They sure beat Brewster Rocket.
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013. Support OCF
| | | | Joined: Sep 2008 Posts: 711 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2008 Posts: 711 | I know we're going a bit off subject here but, speaking of old comic strips, there's a raging controversy in the local daily about keeping "Beetle Bailey". Someone wrote in and said "everyone who ever liked Beetle Bailey is dead by now". I beg your pardon!
David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer. And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer. May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Well, this certainly can be on topic: don't you just hate it when us AARP CERTIFIED ADULTS (50 plus) are written off? All the TV reviews and ratings explictly focus on the 18 to 45 crowd and now the comic pages? Showing just how old I am, don't you just hate the new artist/inker on Judge Parker? I know it's a temporary fill in due to illness, but it's terrible. Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Nov 2009 Posts: 396 | after reading a certain post on facebook today, i was visibly shaken at the responses of a person that has not dealt with cancer. i guess until i actually saw that today, i didnt really realize that unless u are a ORAL cancer patient or caregiver--u DO NOT have any clue about the true effects of this beast. eric, i truly thought there was going to be a cyber-fight, and i wanted u to know---i had ur back 
Teresa ----------- CG to ANDY. Nasopharyngeal Carcinoma (NPC) T2N2cMxG4 stage 4. 43 @ dx 8/31/09 tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3 PORT 9/9/09, PEG 12/07/09 35 IMRT-1/wk carbo 11/30/09-2/3/10 tx stopped due to complications IMRT BOOST 3/08-3/12/10 PET 4/12/10 CLEAR! PEG out 4/14/10
| | | | Joined: Jul 2009 Posts: 453 "OCF Down Under" Platinum Member (300+ posts) | "OCF Down Under" Platinum Member (300+ posts) Joined: Jul 2009 Posts: 453 | Speaking of facebook. One of my so called friends decided to delete me and then post on her wall how I was full of self pity because Steve had cancer. All because I told her I thought people should donate to fund raising if they really cared about curing cancer. She hasn't seen me at all for the 10 months since Steve was diagnosed and has no idea of how we cope day to day with what Steve's been through. If there's one thing I'm not, it's full of self pity. S**t happens and it just so happened that cancer decided to pick on us, along with millions of other people. We deal with it the best we can and always stay positive. God forbid she ever has to go through something like this and needless to say that friendship will never, ever return.
Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone No surgery Teeth removed 06/07/2009 radiation 13/07/2009 x 7wks chemo 15/07/2009 x 3 Cisplatin last TX 28/08/2009 25/11/2009 PET-lymph node activity. 08/01/2010 CT Scan-ALL CLEAR 03/03/2010-Peg removed 01/2013 left side of Jaw removed and replaced with pectoral flap. 23/12/2020 scan show lesion in tongue 01/2021 SCC stage 3 base of tongue diagnosed 01/03/2021 chemotherapy started.
| | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Nov 2009 Posts: 396 | wendy, there never was a TRUE friendship. this will help you to delete your "so called" friends and will leave you with true friends. that was an awful thing to do. my heart goes out to you.
Teresa ----------- CG to ANDY. Nasopharyngeal Carcinoma (NPC) T2N2cMxG4 stage 4. 43 @ dx 8/31/09 tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3 PORT 9/9/09, PEG 12/07/09 35 IMRT-1/wk carbo 11/30/09-2/3/10 tx stopped due to complications IMRT BOOST 3/08-3/12/10 PET 4/12/10 CLEAR! PEG out 4/14/10
| | | | Joined: Feb 2010 Posts: 235 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Feb 2010 Posts: 235 | Wendy, my mouth just dropped open at your post. I think the old phrase "with friends like that who needs enemies" was written for insensitive people like that. Sorry you have to deal with that. UGH.
CG to Spouse BOT, Chemo and radiation started on March 29,2010 Ended on May 14,2010. LET THE HEALING BEGIN!!!
| | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | "OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 | Wendy you have so many real friends and this is not one of them. Try to forget about her as she is not worth having you as a friend 
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | |
Forums23 Topics18,235 Posts197,106 Members13,295 | Most Online1,788 Jan 23rd, 2025 | | | |