| | Joined: Feb 2010 Posts: 9 Member | | Member
Joined: Feb 2010 Posts: 9 | Well I just got back from my doctor. he says there is nothing to worry about. he called it swelling and told me it was probably viral in nature, since there is no visiable irregularites with the look of the tissue. its all pink and such just swollen and hard.
I still insisted on seeing an ent though, so he is going to get me a referral. | | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Good for you Nicole. Too many people are misdiagnosed by their GP who rarely see these cancers. Make certain you are going to an ENT that does deal with cancer preferably at one of the CCC centers. But here's hoping for once your GP is correct.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Nicole, you aren't fsr from my hometown of Steubenville. I like to shopn the Youngstown area. Let me wish you nothing but the best with all of your Drs.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | It's good that you're getting this checked out further. Bear in mind that there are many things that can occur in the mouth that are perfectly normal. I have had many people come to me after noticing a "swelling" on their palate that has actually been there for most of their lives and they never noticed it before.
The "swelling" was actually a torus, which is a benign bony growth that some people get. It is slow growing, so rarely noticed as it grows. It is hard, because it is bone and is covered by thin, pink skin and can be quite large. It usually occurs in the middle of the palate. Now I'm not saying that this is what you have, but just pointing out that it doesn't have to be cancer.
You might want to Google "torus palatinus" and see if anything looks like yours.
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 618 | Nichole,
I don't want to be a sad sack and ruin your day but my oral surgeon thought i had a viral infection. I insited on seeing an ENT anyway, he proved otherwise with the biopsy.
Your doing the right thing by making sure.
Kelly
Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR
| | | | | Joined: Feb 2010 Posts: 9 Member | | Member
Joined: Feb 2010 Posts: 9 | Hi all !
Sorry i haven't posted lately I have been Just trying to kinda forget about "the swelling" till I see the ENT. I just recieved the referal call today from my doctor with the name of an ent who is willing to see me. I am going to call tommarow and scheadul the appointment.
Hopefully I cn get in right away this waiting game stuff is Driving me batty. well time for bed take care all. | | | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 396 |
Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Good luck Nichole and the very best of wishes.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | Good luck Nichole and keep us posted on what is going on. Good job and sticking to your guns with your GP.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Feb 2010 Posts: 9 Member | | Member
Joined: Feb 2010 Posts: 9 | I just got back from the ent and have now decided to get a third opinon. the ent looked in my mouth felt around said it was nothing just a change texture of the tissue both sides are symetrical.
I hope i don't have cancer but this doctor did very little to reassure me.he didn't offer a biopsy or anything. so I am going to wait till payday next week and book an appointment with a Maxiofacial surgeon for a lookover. it seems no one is taking this as seriously as they should since i am a 30 year old female in good health who doesn't drink or smoke at all | | |
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