#11216 07-06-2007 02:53 PM | Joined: Jul 2006 Posts: 388 Platinum Member (300+ posts) |  Platinum Member (300+ posts)
Joined: Jul 2006 Posts: 388 | Liz ... you both are indeed in our prayers. Please keep in touch and keep talking to us - I think being with people who understand this path you are on, make the best listeners.
Warmly, JaneP
Husband: 3 SCC gum and cheek cancers 2002, 2005, 2006: surgery only. Scans clear after removal of small, well differentiated, non-invasive cancers. No radiation. 4th SCC lip diagnosed 4/13/07 - in situ, removed in biopsy. More lip removed 2/8/08 - dysplasia. 2 Biopsies 3/17/09 no cancer (lichenoids)
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#11217 07-06-2007 04:17 PM | Joined: Aug 2006 Posts: 294 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Aug 2006 Posts: 294 | Liz,
It has been a long hard road for you both and you both are in my thoughts and prayers.
Bill D.
Dx 4/27/06, SCC, BOT, Stage III/IV, Tx 5/25/06 through 7/12/06 - 33 IMRT and 4 chemo, radical right side neck dissection 9/20/06.
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#11218 07-06-2007 05:56 PM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Liz, and Rob, I hope you can feel the love and strength surrounding you from all of us who care about you and are praying for both of you. What a long and difficult journey you have had. You have difficult times ahead, too. I hope that you will come here often, both in the weeks to come and down the road. We can all continue to help each other through this, and you will have much to offer others, and you will hopefully continue to find solace here as well.
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#11219 07-06-2007 08:16 PM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | OP "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | when we received the news on thursday i wanted to run home as fast as i could so ithat i could e-mail Amy and ask where she found her strength to deal with this situation.I knew she would say all the right things to me and help me on the path to being the best support to my husband i could and all i found was a computer that wouldnt connect to the internet.the conection is still very fragile and i may dissappear again at any time. Buti will be back home in a few days and back on broadband thank god.
i find it impossible to computethat just 5 short months ago i joined this site as a terrified newbie and now i am battle worn veteran about to lead the assault on the final hurdle.
The man i left such a very sort time ago has gone and is replaced by a strong very brave very kind and loving person,who i feel it impossible not to pity because he has to end his days with such an awful and unpleasent disfigurement that means he is confined to the house.He doesnt even think about having a drink,when the first time in his life it doesnt matter a damn he says thankyou all the time and touches and kisses me every time i am within arms reach.He says he isnt scared and is putting all his affairs in order and dealing with every thing methodically within in the limits of his terrible speech difficulties.He has lost another 14 lbs and is so very very thin now but the dietician says not to force him to have feeds.
I feel very much like second in command to a very brave and courageous general,and i am proud to serve him to the best of my ability.
i know god will forgive his previous mistakes and hope he will accept his spirit into his arms.
My dear friends i would NEVER have survived this ordeal without you all and i hope to continue to survive in this place of love,friendship and support.
yourvery grateful friend across the pond. xx
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#11220 07-06-2007 09:31 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | LIz
I am soo soo sorry to hear of this , Please know that myself and I am sure every one else is holding you in our hearts and thoughts. I wish I could be there to hold your hand as welll. No words can express my thoughts to you right now..please know I am here to listen and sending you ((HUGS)) across the ocean !
Shar
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#11221 07-07-2007 01:52 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Liz,
Words can't describe how I feel right now or what I wish I could say or do to help. Unfortunately death is a part of this cancer and unfortunately only experience can teach you in these final hours. I just wish in times like these that all of us on this site were in one city so we could all help and comfort each other. Since that's not possible, please share your hurt with us just like we were.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#11222 07-07-2007 04:59 AM | Joined: Aug 2006 Posts: 199 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Aug 2006 Posts: 199 | Liz,
There is not much I can say that hasn't already been said so eloquently by others... I was so sad when I read your post, I was thinking about what a tough time you and Rob have had, and now this... I wonder if part of the reason he had such a hard time dealing with everything was that he feared this end result, but now that it's a reality his true self is shining through. You are both in my thoughts and prayers.
Ginny M. SCC of Left lateral tongue Dx 04/06,Surgery MDACC 05/11/06: Partial glossectomy with selective neck dissection. T1N0M0 - no radiation. Phase III clinical trial ("EPOC" trial)04/07 thru 04/08 because tests showed a 65% chance of recurrence. 10 Year Survivor!
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#11223 07-07-2007 07:03 AM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Dear Liz,
God Bless You Both. I pray that he will have an easy passing and that you find the strength to do and be all that you need. It's never easy saying goodbye. Please know that I'm thinking of you both and am on my way to St. Andrew's Church to light a candle. Donna
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#11224 07-07-2007 08:10 AM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Dear Liz - I am so sorry for the sad news. My heart goes out to you and Rob. I so-o wish there was something I could say or do to make things easier for youboth. I hope that in the days ahead, you will find the peace and strength you so deserve to make it thru the difficult days. My thoughts and prayers are with you.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#11225 07-07-2007 12:41 PM | Joined: Jan 2006 Posts: 107 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Jan 2006 Posts: 107 | My Dearest Liz,
How ever you may worship may you be blessed with Strength and Wisdom, The strength to deal with what you face and the wisdom to know how.
Peace be with you
Lenny | | |
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