| Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | I got my suction maching today. it works great for getting the stuff in the mouh, but what do I do about the stuff deep down in my throat. They did not show me how to use they just came and set it up for me and made sure it was working. I did get some smaller tubes and what not, but sure how to get the mucous out of the throat. Any ideas?
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Angelia
GARGLE & SPIT with Seltzer water: the carbonation breaks up the deep mucous like those scrubbing bubbles you see on the TV commercials. It does sting a little bit at first but I found it refreshing. Even plain water will help bring up that stuff if you gargle & spit. focus on the roof of your mouth as you do it, and the mucous should come up enough to suction it out Good luck - at least they showed you how to set it up, my suction machine was just left at the doorstep in a box. charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | I love this suction machine. I was able to actually sleep for three hours last night without interuption. I felft like a new woman, well until I all the mucous that settled in my throat decided to start coming up. Thankful I had the suction machine to get most of it out.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | I also was given Guaifenex (RX) to help with the mucous. The tablets are large so you may have difficulty swallowing them. Many people take Robitussin which contains Guiafenex. Glad the suction machine is helping. Glad you finally got some sleep.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | Joined: Jan 2009 Posts: 33 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Jan 2009 Posts: 33 | I also picked up a suction machine yesterday. I have only 4 more treatments left, but was starting to have issues where I'd wake up from naps having difficulty breathing my throat was so clogged with mucus. I have to agree, I really love my machine! Angelia, I admire you. When things get rough, I just remind myself how rough you had it and that you made it through. I know I can get through these last 4 treatments.
9.29.08: Dx @ 24 w/ T2 SCC, tongue 10.14.08: Partial gloss. & r. neck dissection. Margins/nodes all clear. No HPV. No rad. 10.06.09: Recurrence in l. lymphnode 11.16.09: L. neck dissection + lost nerve XII 12.28.09: 33xIMRT w/ concurrent 3xCisplatin (no PEG) 02.15.10: Done with treatment!
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | Oh, Jen you can do it. Yeah it was rough, but that just means I will be able to help others who go through the same thing. I have also learned a lot from this experience and have become a stronger person. Yes, you can do it. We are all cheering for you.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | I also need to add the I take Robitussin DM, It has the guafenesin and a cough suppressant which has been a life saver as well. I do not cough nearly as much, and if I take it on schedule , every 4 hours the mucous is not as bad. I just have to remember to put it down the tube every 4 hours.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Angelia,
Add your Tx end date to your Signature Line as that will help us help you thru your recovery period.
Also maybe, just maybe, your thick stuff is decreasing.
Glad the suction machine is helping.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Selzter water helped me dislodge the deep stuff once I could tolerate the carbonation. Prior to that plain water helped during the mucositus phase. Try to drink some water first thing when you get up in the morning.
One day it just stopped, about 2-6 weeks post Tx, which has been the average experience here.
Taking decongestants is tricky because it can exacerbate the zerostomia, which makes the mucous harder to dislodge. My doctor prescribed Guaifen/P-ephed (Entex) for me with mixed results.
The best thing to do is stay properly hydrated. 2-3 liters a day. It will also help with the constipation issues from pain meds and protect the kidneys from damage from chemo.
If you didn't have patience before this disease you will have a new found appreciation for it afterwards...
Last edited by Gary; 02-07-2010 02:42 PM.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | My insurance turned me down for a suction machine. I understand the choking from phlem very well and not only at nite in bed, but all day long. maybe if I use my 6 HP air compressor I can blow it down because it sure doesn't like to come up.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
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