| | Joined: Nov 2009 Posts: 4 Member | OP  Member
Joined: Nov 2009 Posts: 4 | Have been out of head & neck radiation now for 1 1/2 months. I have been getting blisters in my mouth. Has anyone has this problem?
Thanks Kyle | | | | | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 618 | I've been out three months.
Still get small blisters on roof of mouth after eating. They are less and less every day. 1.5 months out I was still using the hydracodone before meals.
Kelly
Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I use Percs daily at least twice and I have been out for a long while. I tossed morphine and 2 more thay gave me in Oct. Xanax helps a little. The blisters make the mind wonder too many things.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jul 2009 Posts: 1,409 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 Likes: 1 | Yeah, the blisters do tend to persist. They'll gradually go away, and then they won't bother you anymore. Hang in there!
David 2
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | The blisters, especially alongside the tongue took the longest time to go away. The rule is one month of recovery for each week of treatment - you're just at the turning point. Patience.
It WILL get better.
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | | Joined: Oct 2009 Posts: 11 Member | | Member
Joined: Oct 2009 Posts: 11 | I'm going for 2 years and still get blisters, I think it's from eatting two salty or soury....since my taste buds are still a little messed up..
37/female dx:1/15/08 SSC patial glossectomy of tongue and 7 lyphm nodes removed...6 weeks of radiation...
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