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| | Joined: Mar 2009 Posts: 147 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2009 Posts: 147 | Birkan, I would definately have your brother talk to his RO or MO about trying the Pilocarpine. Worth a try. I did not suffer any of the potental side effects. I am taking a 5mg tablet 3 times per day. They are not time released so they can be crushed if they need to be put through a PEG.
Carmen
DX 2/10/09; Stage 1 SCC side of tongue; Partial Gloss; PEG in 3/3/09; 3 Cisplatin; 35 IMRT; PEG out 7/17/09; Eating via mouth and walking 3 miles/day 4 wks after treatment end. 50 pound weight loss; Clear PET 09/09 and 09/10
| | | | | Joined: Dec 2009 Posts: 4 Member | | Member
Joined: Dec 2009 Posts: 4 | Carmen,
thank you so much. we asked his RO and said he can use it. i was just wondering about side effects. but he will use it.
can i get this from any pharmacy? because in Turkey we do not have it. i live in Dallas so i can get it myself for my brother.
thanks
birkan | | | | | Joined: Mar 2009 Posts: 147 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2009 Posts: 147 | Side effects listed on the pamphlet included with the RX included burred vision, Jitters, Excess sweating, excess tearing and runny nose. There were others, but this is all I remember. I have the runny nose = but that is just an annoyance.
I had no trouble getting it at a local pharmacy. Good Luck.
DX 2/10/09; Stage 1 SCC side of tongue; Partial Gloss; PEG in 3/3/09; 3 Cisplatin; 35 IMRT; PEG out 7/17/09; Eating via mouth and walking 3 miles/day 4 wks after treatment end. 50 pound weight loss; Clear PET 09/09 and 09/10
| | | | | Joined: Dec 2009 Posts: 4 Member | | Member
Joined: Dec 2009 Posts: 4 | I am searching it on internet and they require prescription.
Do I need a prescription to buy it from local pharmacy either?
thanks | | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Yes you need a prescription for it. Ask your RO. The only side effect I had was excessive sweating for about 5 minutes after I took it. This problem can be much worse in a very humid environment.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | | Joined: Mar 2009 Posts: 147 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2009 Posts: 147 | Sorry Birkan - I should have been more specific - I had no trouble getting it at a local pharmacy with a prescription.
DX 2/10/09; Stage 1 SCC side of tongue; Partial Gloss; PEG in 3/3/09; 3 Cisplatin; 35 IMRT; PEG out 7/17/09; Eating via mouth and walking 3 miles/day 4 wks after treatment end. 50 pound weight loss; Clear PET 09/09 and 09/10
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