#10961 06-15-2007 03:50 PM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Is this air compressor called a Nebulizer? I had one of those after permanent trach surgery and just used humidfier for same reasons you are. Dr orders Nebulizer, insurance pays for it, do you really need it? If not dump it. You may not want to send back until you are certain you don't need it. I used it before I went to bed and during day, but not at night. Even my humidifier is too nosy these days. Hope you get some good sleep without meds.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#10962 06-15-2007 04:39 PM | Joined: May 2007 Posts: 231 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: May 2007 Posts: 231 | It may be a nebulizer. I really have no clue. All I know is that its a small compressor that is supposed to pump a fine mist through a tube and into a trach mask for me to breathe. Other than that its just a small air compressor to me... LOL
I dont really know if I need it or not but they brought me another one today that is quieter than the one they brought yesterday. I think Im gonna try and put it in my closet and run the hose to my bed and see if its still strong enough to push the mist to where I need it.
I will keep ya posted.
Dx Mar 07 with Base Of Tongue Stage IV. IMRT 35x with 3 doses Cysplatin ran concurrent. Tx ended May 31,07. Left and right node involved. Radical neck disection 7/18/07
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#10963 06-16-2007 12:22 PM | Joined: May 2007 Posts: 231 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: May 2007 Posts: 231 | Well, I put the compressor in my bathroom last night and tried it like that. I think it may have worked but am not sure. I know that the mucous seemed like it wasnt dry but yet the inside of my nose was. I have moved the compressor into the bedroom now and will see how that works. I have hose ready in case I have to move it back.
The sleep meds seemed to have worked. I feel like I went to sleep as soon as I went to bed. I also remember waking up during the night for the mucous and to use the bathroom but dont remember much other that. I slept until 2pm. I woke up kinda groggy but dont know if thats hangover effect, more sleep than Im used to getting or needing to get used to the medicine.
Dx Mar 07 with Base Of Tongue Stage IV. IMRT 35x with 3 doses Cysplatin ran concurrent. Tx ended May 31,07. Left and right node involved. Radical neck disection 7/18/07
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#10964 06-16-2007 12:44 PM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Billy, I see you figured out the signature thing!!! Way to go. I also see your 44 w/ BOT. Were nodes involved? Did you get your slides tested for HPV?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#10965 06-17-2007 01:17 AM | Joined: May 2007 Posts: 231 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: May 2007 Posts: 231 | 1 left and 1 right node involved. They are talking about neck disection next month. I dont know about the slides being tested. What is that??
Dx Mar 07 with Base Of Tongue Stage IV. IMRT 35x with 3 doses Cysplatin ran concurrent. Tx ended May 31,07. Left and right node involved. Radical neck disection 7/18/07
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#10966 06-17-2007 07:03 AM | Joined: Jul 2006 Posts: 446 "OCF Canuck" Platinum Member (300+ posts) | | "OCF Canuck" Platinum Member (300+ posts)
Joined: Jul 2006 Posts: 446 | He referring to testing for HPV virus. There is an increasingly strong connection between HPV and some oral cancers The neck dissection thing is no picnic, but personally I am really glad they did it, even though there was no indication of nodal involvement. I am convinced that for me, I had to throw everything including the kitchen sink at the Beast, first time around. I don't want a second time. You will be OK. For me, the radiation was far worse than the surgery, and I had a LOT of surgery Wayne
SCC left mandible TIVN0M0 40% of jaw removed, rebuilt using fibula, titanium and tissue from forearm.June 06. 30 IMRT Aug.-Oct. 06
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