| | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 618 | Angelia,
Christine is right, you will end up in the hospital if you cannot take in enough calories. Do you have a nutritionist?
Kelly
Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | David,
I hope you're feeling better today. We have over a foot of snow and you're welcome To come up here to start feeling better.
No sickness in this house. Must be the cold air keeping those viruses and bacteria inactive.
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Angelia,
Reality check!!!!
WAY WAY TOO MUCH LOST IN THAT SHORT PERIOD.
Believe me if you THINK you are feeling bad now, just get dehydrated and associated weakness and develop the BIG C on top of everything else and you will REALLY know pain and discomfort. You will also, as everyone else has said, end up in the hospital and they will hook you up and drip food and water into you until you are out of the woods and waste about a week in the damn hospital so avoid all that agony and make sure your RO knows you have lost so much and can't keep anything down.
Otherwise we will all beat you up!!!
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Jerry,
I really appreciate you most kind offer but I'LL HAVE TO PASS ON THAT STUPID OLD PERSON'S SENILE SUGGESTION!!!!!! Perhaps you need to get out of that cold and let your brain warm up to proper recommended operating temps. Just saying...
Today they are saying that we might not get out of the 50's. So much for that global warming stuff.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | My husband called the Dr. today and he said that I was not tolerating the Jevity in my stomach and to try Ensure or Boost ot carnation INstant breakfast. He is going to look at it tomorrow when I go in for treatment, but in the mean time stop using Jevity and try something else. I do nto think it is the Jevity though. I think it is this stupid uvula causing me to gag and then once I do that is all she wrote. I know i cna tolerate Ensure and Boost as I have been drinking those without problems. Guess I will need to go buy stock i those and send back all those cans of Jevity.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | Hi Christine:
On your post you mentioned choc peanut butter milkshakes and that the recipe is listed in the "eating section." Where is the eating section, or how do I get to it? Thanks. The milkshake sounds good.
Julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer  | | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Angelia
Listen to Christine !
DavidCPA
I just shoveled 24 inches of Snow out of my driveway. I am so proud. Some life in the old dog yet
Everybody
thank you so much for viewing this thread I started. We can make 11 Thousand by Christmas with 10870 views today.
Charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Feb 2006 Posts: 8 Member | | Member
Joined: Feb 2006 Posts: 8 | Ok. I'm sitting in the hospital waiting room amongst about twenty or so people who are also waiting when the wife of a friend sees me and asks what I'm there for. At this point in my treatment I was waiting to get a scan and hadn't started radiation yet. When I told her why I was there and that I had cancer, she decided to loudly tell me, in earshot of everyone else, that I should have been using a juicer. "Don't you have a juicer?" (Wore it out ten years prior.) "You have to have a juicer." And in some wierd mother knows best tone of voice as she's walking away, something to the effect of "You might not be in this mess if you had a juicer." I looked around me and some folks were looking at me with some sort of a s*&^ *!+=^% smile on thier faces as if to say, "My, wasn't she just so sweet." AaaaagggHHHHHHHH.
Hap
59 years old at dx 12/05 BOT stage IV surgery chemo and Tomo RT PEG
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Charm,
And you call that fun I guess???
We only made it to 59 yesterday. That's soooo cruel!! I could see my breath this am. Aruba here I come!!
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 701 Likes: 1 | I had to contribute this one. My sister is visiting for the holidays. She lives in a foreign country, and we don't see her very much. I retired right after my husband was diagnosed in 11/07. Good thing, too, as my job as caregiver has been full time ever since. I am also a fine art painter and have put aside my brushes temporarily.
The other day, she asked me since I am not painting, what do I do all day? I laughed and said, "Good question. Between Dr. appts., meds, and dressing changes, I guess not much."
I should have said that I sit around in my fluffy slippers, eating bonbons, and watching soaps. Unless one has been there, most people don't really know what this cancer trip is all about. Oh, well, water off the duck's back.
Anita
Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
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