#10885 06-06-2007 09:02 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | OP  "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Well, the tumour is still pressing on my jaw/nerve, but the op is now cancelled--new face in the Hn clinic today was another oncologist--my CT scan shows primary is probably lung, it's spread to jaw, lymph-nodes and liver, therefore no point in anything but an attempt at chemo. Won't know anything til at least next Thursday, possibly the week after when I go to a different hospital to see the new team. So I guess I'm now in the wrong forum  Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#10886 06-06-2007 09:12 AM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Dear Brenda,
I'm so sorry-I can't begin to imagine what you are feeling. I am praying for you.
Donna
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#10887 06-06-2007 10:26 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Brenda
Sorry I've only just seen your post, sorry that you have to join us.
Where are you going to be treated? Have you done a web search on the Docs at the new hospital? Have you spoke to someone at Cancerbackup? Free phone 0808 800 1234 9am - 8pm. Specialist nurse on hand and very good advice and information.
Please keep posting to keep us informed on your treatment.
Sunshine.. love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#10888 06-06-2007 11:03 AM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Bow out!!!!
come on Bren your'e a Yorkshire lass and you know we never give up without a fight.Got your e-mail,and have to say it threw me a bit but dont leave this forum yet it can still be here for you
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#10889 06-06-2007 05:56 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Brenda,
Everyday that you live with cancer you're a survivor so you are in the right place. We're glad that you are here.
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#10890 06-07-2007 07:45 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | OP "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Thank you everyone for support in general and partcularly to Liz for emails, Petey and Helen for links and suggestions!
Am still pretty much in shock I think
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#10891 06-09-2007 03:42 PM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | Brenda, my thoughts and prayers are with you. Wish I could say something to make you feel better...here...take this hug: HUG!
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
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#10892 06-10-2007 06:48 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | OP "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Hugs and messages SO help! And the irony is, that since my biopsy, 3 weeks ago, jaw is actually more comfortable and can enjoy REAL ones as well as virtual ones!
Got appointment to see new team on Thursday!
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#10893 06-10-2007 07:23 AM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Surprised to see you posting at this time on a Sunday i thought you would be enjoying the late evening sunshine at the caravan.Hope the thoughts are sorting themselves out and hang fire till Thursday.
love liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#10894 06-10-2007 11:32 AM | Joined: May 2004 Posts: 80 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: May 2004 Posts: 80 | hi katrina et al, i haven't been posting to this board for a couple of years, but i came back to the site to look up some of the postings from the time i was visiting regularly... among these i found a thread about nutrition, with some good info and tips... even though the thread is about 3 years old, you may find the info useful. thread on nutrition sending you good energy. gita
sister diagnosed 11/03 SCC maxilla keratenizing stg IV T1N1Mx; 4-7 positive lymph nodes; dissection 12/03 left upper pallette removd; radiaton left side 35 sessions 2/04-4/04; recurrence same side 4/04; chemo began 5/04 incl cisplatine, 5fu, taxotere
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